tag:blogger.com,1999:blog-56860754786507134362024-03-18T21:58:11.488-07:00Simply SoaresGretchenhttp://www.blogger.com/profile/18149076121047338972noreply@blogger.comBlogger614125tag:blogger.com,1999:blog-5686075478650713436.post-81844212761977825652015-04-14T12:14:00.000-07:002015-04-14T12:14:11.173-07:00Ramblings of a momma<div style="text-align: center;">
<span style="text-align: right;">Yea yea yea.... I know... it's been a while.... oh well! Such is life, move on! </span><br />
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<span style="text-align: right;">This morning I am sitting here in a place we keep seeming to come back to (Children's Hospital Oakland) with little to do besides wait for our appointments. And in this my heart felt called to write. It's kinda odd how God keeps bringing me here for Nathaniel's care, then using the time to do some major works in my heart and life, but who am I to question God? So I decided to wander down this path and see where He leads today.</span><br />
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<span style="text-align: right;">Right now Nathaniel and I are just hanging out at Family House and waiting for his appointments this afternoon. He is happily playing on his electronics, but my brain won't stop spinning. </span><br />
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<span style="text-align: right;">As I lay here thinking and praying I am struck over and over again with the fact that this journey with Spina Bifida and my family started 15 years ago, almost to the day! It is very surreal to me that we are once again facing major surgery almost 15 years to the day from when all of this began for us. So very much has changed in those 15 years, and yet some things haven't changed at all. There are way too many things to list, but these are the ones that strike me deepest today:</span><br />
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<span style="text-align: right;">Nathaniel is no longer a little baby growing inside of me. He is a young man with a personality and spirit all his own. It's still my job to care for him to the best of my ability, but he has a voice in that care now too.</span><br />
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<span style="text-align: right;">Spina Bifida isn't a big, scary mystery anymore, it's a part of our life that we live with and deal with every single day. In the last 15 years not a SINGLE day has gone by that Spina Bifida hasn't had a part in.</span><br />
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<span style="text-align: right;">I still hate all things medical and most of all the thought of cutting a body open, and yet this will be Nathaniel's 45th surgery in his life! </span><br />
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<span style="text-align: right;">I am still terrified of shunts, and while we have been spared the shunt journey up until this point, tomorrow Nathaniel will be getting a shunt and our shunt journey will begin.</span><br />
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<span style="text-align: right;">There are many things rambling around my heart and mind, but most of all I keep going back to the beginning, and it struck me how many new people are in our lives that don't know the story of 15 years ago. So I decided to link it here, for those of you who want to read it. These are my memories of the beginning of our family's journey with Spina Bifida, the journey that began 15 years ago tomorrow.</span><br />
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<span style="text-align: right;">LINK 1</span><br />
<span style="text-align: right;"><a href="http://simplysoares.blogspot.com/2009/04/9-years-ago-yesterday.html?m=1" target="_blank">http://simplysoares.blogspot.com/2009/04/9-years-ago-yesterday.html?m=1</a></span><br />
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<span style="text-align: right;">LINK 2</span><br />
<span style="text-align: right;"><a href="http://simplysoares.blogspot.com/2009/04/so.html?m=1" target="_blank">http://simplysoares.blogspot.com/2009/04/so.html?m=1</a></span><br />
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<span style="text-align: right;">LINK 3</span><br />
<span style="text-align: right;"><a href="http://simplysoares.blogspot.com/2009/05/wow.html?m=1" target="_blank">http://simplysoares.blogspot.com/2009/05/wow.html?m=1</a></span><br />
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And by now I am sure you have had enough of my ramblings for now, so I will sign off and dive back into my bible. But in closing can I ask a favor of you? Could you keep this afternoon's appointments in prayer? For clarity on the plan. For peace in the plan. And for God's ever perfect plan to be the one that is followed.<br />
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Until later, when I have a plan to share with you...<br />
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<br />Gretchenhttp://www.blogger.com/profile/18149076121047338972noreply@blogger.com0tag:blogger.com,1999:blog-5686075478650713436.post-37728812339394051032014-09-28T14:42:00.001-07:002014-09-28T14:42:14.449-07:00Well HELLO there!<div style="text-align: center;">
<i>Hello My Blog!!!!</i></div>
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<i>Oh MY has it been a LONG time since I have written here.....</i></div>
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<i>Over a YEAR! </i></div>
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<i>My bad.</i></div>
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<i>Through the years this blog has been many things to our family, and those who read it. </i></div>
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<i>It has been a way to share our family with friends near and far.</i></div>
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<i>It has been an outlet for my personal journey with God. </i></div>
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<i>It has been a chronicle of our journey with Spina Bifida.</i></div>
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<i>It has been a way to share my passion for pictures.</i></div>
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<i>It has been a chronicle of our family's journey with Domestic Violence and getting freedom from that.</i></div>
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<i>It has been a way to show off my cute kids.</i></div>
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<i>It has been a way to keep people up to date and share prayer requests on Nathaniel's many health adventures.</i></div>
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<i>And it has been a way for me to express my heart in writing, with the hope that perhaps it touches someone right where they need it. </i></div>
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<i>And honestly? I am not sure the direction it will take now, but I do KNOW that God has been calling me to write and share my heart again. He has been calling on me to do this for a while now, and the typical person that I can be has ignored that. </i></div>
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<i>I have been busy, you know? </i></div>
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<i>(Yea right, like that is an excuse!) </i></div>
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<i>And we just moved half way across the country</i></div>
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<i> (yea... another excuse). </i></div>
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<i>And... well I haven't felt like I have much to say that will really IMPACT anyone</i></div>
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<i> (more excuses!). </i></div>
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<i>I have been doing the silly little song and dance of "you tell me what to write about and I will write". But, as you have probably guessed that didn't work too well either :) </i></div>
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<i>So today, I have decided to JUST WRITE... and see where the journey goes!</i></div>
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<i>Plus, now we have TONS of friends and family that are near and dear to us, but so very far away, so I thought I would share a little of what is going on in our new life here in Oklahoma! (oh, and my camera has been dusted off, and is back in use, so I have to share pictures too, right?)</i></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj9JmU5rWtJF-5MK21TgKg_m4e-uW7KGehOU-X970nN3ZPH1coHy3Xkfy8EZWLuGbUdw33DDyfWsxUbjLm2UVBAXtTTWWOSliVi0fq5a9m8eiZcUoG3jOz93nt_h5AQPgBPtkQ5xM_8ssQK/s1600/IMG_8017.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj9JmU5rWtJF-5MK21TgKg_m4e-uW7KGehOU-X970nN3ZPH1coHy3Xkfy8EZWLuGbUdw33DDyfWsxUbjLm2UVBAXtTTWWOSliVi0fq5a9m8eiZcUoG3jOz93nt_h5AQPgBPtkQ5xM_8ssQK/s1600/IMG_8017.JPG" height="426" width="640" /></a></div>
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<i>In the new school that the kids go to, Nathaniel is in a self contained classroom. This is the first time we have placed him in this kind of classroom with this much support, and honestly I have mixed feelings about it. I am trying to trust the Lord, and go with it. I know he is doing well, which is a good thing, especially after the blow out he had trying to function on the Middle School campus last year in California. But I also feel like he is missing out on some things. It's the juggle and compromises we have to make some times. One of the super cool things that he is getting to do through school this year is therapeutic horse back riding! It has been MANY years since Nathaniel has been on a horse, and as you can tell from his expression, he wasn't too sure about it at first!</i></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgH34uky0bRogW2P6b0xCKKsdTmEgYK6ko3RVTcCMruVIjz28c_ZeYhEa-HZLCJcgyWSgphxYcGKNakUBY6nUjiUBdeTegN24-lKGUb9T7id6EyMfxTmR1-3ZB2B_bHq4-KXKl49KqF73zz/s1600/IMG_8018.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgH34uky0bRogW2P6b0xCKKsdTmEgYK6ko3RVTcCMruVIjz28c_ZeYhEa-HZLCJcgyWSgphxYcGKNakUBY6nUjiUBdeTegN24-lKGUb9T7id6EyMfxTmR1-3ZB2B_bHq4-KXKl49KqF73zz/s1600/IMG_8018.JPG" height="640" width="504" /> </a></div>
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<i>Once they got him all saddled up and ready to go he seemed much more comfortable, and by the end of the session he was jazzed and ready to go back next week!</i> </div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiN5eQTO8ozG7dy-j7CjKWedIwARfXuJZk38ZC5t_-CvsynY6ExH_YQhwivp5MehBI3ETyCgQfhqLGIeTt8FVRS_fHAk5vvwNYxw4pVm-S0O6Bw5ksesfCdaRxviHMVTJ-LVB-6N41WRFpU/s1600/IMG_8020.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiN5eQTO8ozG7dy-j7CjKWedIwARfXuJZk38ZC5t_-CvsynY6ExH_YQhwivp5MehBI3ETyCgQfhqLGIeTt8FVRS_fHAk5vvwNYxw4pVm-S0O6Bw5ksesfCdaRxviHMVTJ-LVB-6N41WRFpU/s1600/IMG_8020.JPG" height="235" width="400" /></a></div>
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<i>Anyways, back to the school thing... </i></div>
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<i>They load all the kids in the class (about 12 students, ranging from 8th grade to seniors in high school) on a bus and take them to a local stable. Then each student gets a 30-45 minute session on the horse. While the students are waiting their turn there is a classroom set up at the facility where the students can see their friends riding and work on their class work at the same time. I personally think this is great for Nathaniel, a very low key way to work on his Sensory Processing stuff. Having a goal of work to do while something very distracting to him is happening.</i></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEighbs4g9zLGdYDtfX4QA0D3MiK9WXXxTIpgP3b_sLf_sKllaQvwqKyfHO5Inge0S4tYDHVThKFuULQoKqATqX39q0bSsJsjK7VtB_niwwSECR9U7NtJ-LWOZqaAwU2p8tcP4XINuWbDpS4/s1600/IMG_8023.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEighbs4g9zLGdYDtfX4QA0D3MiK9WXXxTIpgP3b_sLf_sKllaQvwqKyfHO5Inge0S4tYDHVThKFuULQoKqATqX39q0bSsJsjK7VtB_niwwSECR9U7NtJ-LWOZqaAwU2p8tcP4XINuWbDpS4/s1600/IMG_8023.JPG" height="438" width="640" /></a></div>
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<i>This week Nathaniel was in the second group to ride, which was very handy for Steven and I! We got to see lots of his session before we needed to head back for Steven to get ready for work. I was super impressed with the volunteers who worked with the students and the calm peaceful atmosphere of the stables.</i></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhpJH_Sm0Cf9R8y1wK0MRE7dADq9IPBhiDsR0t5Z0U07IzCS-g1p96xuHjpYMkzT1_AGrz-hghQJrYRZb8uOlu1Lo9em86x57bGu4rh6P9RS-6hWTAhxpyAqQF6gWgb1u1dP5YhyphenhyphenYPS9wr5/s1600/IMG_8024.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhpJH_Sm0Cf9R8y1wK0MRE7dADq9IPBhiDsR0t5Z0U07IzCS-g1p96xuHjpYMkzT1_AGrz-hghQJrYRZb8uOlu1Lo9em86x57bGu4rh6P9RS-6hWTAhxpyAqQF6gWgb1u1dP5YhyphenhyphenYPS9wr5/s1600/IMG_8024.JPG" height="544" width="640" /> </a></div>
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<i>And of course I was also super impressed with my big Little Man, who did a great job and really enjoyed himself!</i> </div>
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<i>Well....</i></div>
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<i>The good news is that I actually got a blog post up, and half of the battle is jumping back in the saddle and just getting it done, right? The other half of the battle will be keeping myself going and seeing the direction I am to be heading now. But for now I am going to count it a victory and get ready for some fellowship time at home group!</i></div>
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<i>As always, thanks for reading and see you soon (I hope!) </i></div>
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Anonymoushttp://www.blogger.com/profile/07703827195954238729noreply@blogger.com0tag:blogger.com,1999:blog-5686075478650713436.post-42033779171131197062013-09-06T07:29:00.000-07:002013-09-06T07:29:03.745-07:00In Memeory of My Angel<div style="text-align: center;">
Mixed in with all of the blessings of life are all of the abrupt halts, quick U turns and broken dreams. Sometimes these sharp turns that no one expects are the most defining things in our life. They bring us to our knees, make us totally dependent on Him and shape our hearts into who we are. One of the most defining and devastating moments of my life happened 15 years ago today.</div>
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15 years ago today I became what no woman every thinks she will be, but far too many are forced to be, I became a mommy to an angel.</div>
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My beautiful daughter, Taylor Ann was born on September 6, 1998 and on that same day she went home to glory, leaving this momma with empty arms and a broken heart.</div>
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One of the things I look forward to most is the day I get to heaven and ALL of my children and I get to dance together in the presence of our God. The moment when all of my precious children can be held in my arms and loved on at once, for I have never got that joy on earth.</div>
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The journey I have taken as a mommy of an angel has taught me so much, more than even I have the ability to put to words. But one thing I know for sure is it has taught me to NEVER take anything for granted! If you love someone, tell them. If someone stands against you, forgive them. If you harm someone, humbly ask their forgiveness. Enjoy the simple glories of life that surround you every day, even in the midst of the storms. We never know how many tomorrows we will be given and who might be missing from those tomorrows.</div>
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Never does a day go by that my sweet daughter is far from my thoughts and deep in my heart, but we move on too. Her brother and sisters grow up, meet milestones she will never get to, and we all still remember. One thing that reminds us daily of the depth of her touch in our life is her brother Nathaniel. Had it not been for Taylor's death I KNOW I wouldn't have had the courage and determination to fight for life for Nathaniel, to fight for all that makes him a precious part of our life. Taylor's death gave Nathaniel the gift of life.</div>
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Today while we remember our sweet angel, I ask you to love on yours. </div>
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Give hugs and kisses.</div>
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Dance to imaginary music.</div>
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Laugh and giggle.</div>
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Forgive.</div>
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And count your blessings!</div>
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Taylor, you are missed.</div>
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You are LOVED beyond words.</div>
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You are our treasure.</div>
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Happy 15th Birthday sweet angel Taylor!</div>
Anonymoushttp://www.blogger.com/profile/07703827195954238729noreply@blogger.com1tag:blogger.com,1999:blog-5686075478650713436.post-52245601382600854012013-08-21T23:00:00.000-07:002013-08-21T23:00:06.267-07:00Testimonsy<div style="text-align: center;">
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Soon after we came home from Oakland I was asked to give testimony at church about the experience and how God sustained us through the valley we walked through. This is what it was shown at church after some of the editing. I thought some of you might like to see it.</div>
Anonymoushttp://www.blogger.com/profile/07703827195954238729noreply@blogger.com4tag:blogger.com,1999:blog-5686075478650713436.post-37153319688726508892013-07-26T07:36:00.000-07:002013-07-26T07:36:01.045-07:00Beach Magic<div align="center">
If you know us at all, you KNOW we LOVE the beach. It is part of the fiber of who our family is. Also, you probably know about out "other" family... our Project Surf Camp family, which is also part of the fiber of who we are. </div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjwSY3JtlElt1Ty-LgK2fblVSRL5FdJ3HyGVSJghllSgeAU7guJ39B8hyphenhyphenRiyeHvHkQ8JFF68aLHzcQvz4F04V2LwDjReOl38iyxGDf25Sc0wsC1LBGORwwJm5vpjGzIgUG9Hem2VcjLsAz9/s1600/psc71213-Photogs+Faves-0008.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjwSY3JtlElt1Ty-LgK2fblVSRL5FdJ3HyGVSJghllSgeAU7guJ39B8hyphenhyphenRiyeHvHkQ8JFF68aLHzcQvz4F04V2LwDjReOl38iyxGDf25Sc0wsC1LBGORwwJm5vpjGzIgUG9Hem2VcjLsAz9/s400/psc71213-Photogs+Faves-0008.jpg" width="400" /></a></div>
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With Nathaniel's recent health struggles and surgery I was very worried that we wouldn't get to experience the magic of Project Surf Camp this summer, and my heart was breaking over that. I think Nathaniel's was too, as it was ALL he talked about while in Rehab. You can't possible imagine the excitement and relief I felt when Dr. Sun told us he was released to surf. I actually did cry tears of relief and joy. Our family was able to join PSC for the opening day of surf camps season this year, yet I have been remiss in blogging it because the emotions were just too raw. I am going to take a stab at it today, and hope the tears stay where they belong!</div>
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To us, Project Surf Camp is:</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEixmELn_FMZqeQEO-NNcxo3LsE8yPuaGOmQiazfryWo-dMv0s_pQuoRMKn0IhiGZrNEPGgUAzGzOk8qX0_tcAjxM7t2fBNK4KxUZmfwco3DZbYfoIu264P61gR5PrtPvwPASUFw0leDF3Fy/s1600/PicMonkey+Collage+1.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="100" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEixmELn_FMZqeQEO-NNcxo3LsE8yPuaGOmQiazfryWo-dMv0s_pQuoRMKn0IhiGZrNEPGgUAzGzOk8qX0_tcAjxM7t2fBNK4KxUZmfwco3DZbYfoIu264P61gR5PrtPvwPASUFw0leDF3Fy/s400/PicMonkey+Collage+1.jpg" width="400" /></a></div>
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Family that welcomes us home with open arms and love in their hearts.</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj1021SIHL7MnhelvUbMuxUok8aAFPyLcCcnb5ac82x9Ve3Ud-d8EnRypWBif63TfpbUz7adCEicjnUfwGb6xBVh0pwcb-wFBMhwEtql85pZ1QCCtOlqnRDBXkJZwDGaNUEtOqwMoj9xzKM/s1600/psc71213-Photogs+Faves-0001.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="213" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj1021SIHL7MnhelvUbMuxUok8aAFPyLcCcnb5ac82x9Ve3Ud-d8EnRypWBif63TfpbUz7adCEicjnUfwGb6xBVh0pwcb-wFBMhwEtql85pZ1QCCtOlqnRDBXkJZwDGaNUEtOqwMoj9xzKM/s320/psc71213-Photogs+Faves-0001.jpg" width="320" /></a></div>
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Accessibility to one of God's greatest gifts for ALL!</div>
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A chance for siblings so differently abled to do something magical together.</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgetJ3CqI0crzd2dFj_MofNcsZ-QE7PDWoiT1ZJrTUpeOZ5dk8NrJHXNYooZoGPxuHTlic3GWKc4WY7CL-Mc1kSkc4DoX3VfDoKQdnTsaFytbapjpRmkKUxRcMjl8Wunvzwb4KvMInjUQxE/s1600/psc71213-un+edited+part+2-0267.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="155" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgetJ3CqI0crzd2dFj_MofNcsZ-QE7PDWoiT1ZJrTUpeOZ5dk8NrJHXNYooZoGPxuHTlic3GWKc4WY7CL-Mc1kSkc4DoX3VfDoKQdnTsaFytbapjpRmkKUxRcMjl8Wunvzwb4KvMInjUQxE/s320/psc71213-un+edited+part+2-0267.jpg" width="320" /></a></div>
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It's a time for personal victories.</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhHwSwMFfIg1gThLiF85zZbEl8iACtGcNRVqf9AqoBzbSLst_j0DHIHTEvnneoqz5bBpchhJApdy-FaZOrEsBSkaQ_Nm_LJv3zxt1vL7KqID_E_35xsg5wY0yjl6c8WJDaDRd8hgmwydt_d/s1600/PicMonkey+Collage+3.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="160" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhHwSwMFfIg1gThLiF85zZbEl8iACtGcNRVqf9AqoBzbSLst_j0DHIHTEvnneoqz5bBpchhJApdy-FaZOrEsBSkaQ_Nm_LJv3zxt1vL7KqID_E_35xsg5wY0yjl6c8WJDaDRd8hgmwydt_d/s320/PicMonkey+Collage+3.jpg" width="320" /></a></div>
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And a time to share the blessings with treasured friends.</div>
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To me personally, this day was</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEinvyNkQuomd_uv9_psMbS3RMtU36IMvIWsc9fayaVeiGXZBLliaLkCB4EgA5mhj4UW8rB-FQEWchca2jib9yEhuqzftAmHvcF65YPWjVm2fzCuGHsWbsQEmqMNIogUC1_8nZ4n6Gz6tCmh/s1600/IMG_3635.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="285" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEinvyNkQuomd_uv9_psMbS3RMtU36IMvIWsc9fayaVeiGXZBLliaLkCB4EgA5mhj4UW8rB-FQEWchca2jib9yEhuqzftAmHvcF65YPWjVm2fzCuGHsWbsQEmqMNIogUC1_8nZ4n6Gz6tCmh/s320/IMG_3635.JPG" width="320" /></a></div>
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About contagious JOY! From a boy who had MAJOR, life altering spinal surgery just 38 days before this!</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiNKMW7o6CFeyPqGdOs79MJPWpiGDyAIYOlEeExs2SRr0lL7V3ajfDtffc8mbg1yTRk_ICgVxRW8aJQ_B0tjNvEEGPLLr5NoZbe3czELTr2Wxc-ItZLQaGzmET7VqWHYV4Ag4Ttrx188peU/s1600/IMG_3646.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="226" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiNKMW7o6CFeyPqGdOs79MJPWpiGDyAIYOlEeExs2SRr0lL7V3ajfDtffc8mbg1yTRk_ICgVxRW8aJQ_B0tjNvEEGPLLr5NoZbe3czELTr2Wxc-ItZLQaGzmET7VqWHYV4Ag4Ttrx188peU/s320/IMG_3646.JPG" width="320" /></a></div>
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It was about personal victories and finding out that no matter how changed his body is, he can still fight back and be victorious!</div>
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It was about our family finding normal again.</div>
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And it was about PRAISING the Lord for His GREATNESS!</div>
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On this special day at Project Surf Camp, I hung up my hat as Board of Directors member, I didn't even take many pictures (and if you know me then you KNOW that is a miracle),</div>
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I just BASKED in His glory. </div>
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I let Him wash all around me as I prayed and worshiped Him for His GREATNESS.</div>
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I wept tears unending.</div>
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And I TOTALLY enjoyed the precious gift of my children SURFING TOGETHER!</div>
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If you wonder why we say that Project Surf Camp CHANGES LIVES, this is just one small story of the HUGE greatness this camp does. </div>
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If you want to experience TRUE magic, and God's blessing, let me know, I would LOVE to take you down to the beach with us, get you hooked up to volunteer.... I GUARANTEE you will walk away a changed person.</div>
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I am excited to say, we are heading down to the beach today... and I can't tell you how much my heart needs a little magic today! </div>
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I also want to mention a quick THANK YOU to Breann Hollon of <a href="https://www.facebook.com/breannhollonphotography" target="_blank">Breann Hollon Photography</a> for the AMAZING images of this special day that she captured. My dear, sweet friend volunteers her time and talent to come out and take fabulous pictures that she provides to PSC families free of cost. What a sweetheart! But she also does great work here locally too, so if you need so fabulous photographs, make sure you look her up!</div>
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Anonymoushttp://www.blogger.com/profile/07703827195954238729noreply@blogger.com0tag:blogger.com,1999:blog-5686075478650713436.post-53836436714681809562013-07-15T08:53:00.001-07:002013-07-15T08:53:35.346-07:00My Cup Runneth Over<div align="center">
I am sorry it has been so many days since I updated. We have been basking in the GLORY of all God is doing, and running like crazy to try and keep up with life! Let's Go back to Tuesday and see what has been happening.</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiLnJ83NXx_PXIH5s4qvQFnZBMAF_VuA1mrCSl3g21zqO-ngmFJkZlmkH4TQ2f9Uc3-_qW9TRi8rdw9DN2x2OroOuFNEzsmjCgIEiUPoQ8hQ_tvPxUu3z4ZC_8L4vTSO0QXOKc2ikXA7PE/s1600/21374_10201501742646321_1913712412_n%5B1%5D.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiLnJ83NXx_PXIH5s4qvQFnZBMAF_VuA1mrCSl3g21zqO-ngmFJkZlmkH4TQ2f9Uc3-_qW9TRi8rdw9DN2x2OroOuFNEzsmjCgIEiUPoQ8hQ_tvPxUu3z4ZC_8L4vTSO0QXOKc2ikXA7PE/s320/21374_10201501742646321_1913712412_n%5B1%5D.jpg" width="320" /></a></div>
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Tuesday morning, after getting his kicking new shoes, Nat rocked his last couple of therapy sessions. While he was working away, I was packing away. We sure managed to get a LOT of stuff over the 6 weeks we were at the hospital! But I got it all packed up, checked out of the family house again, and got the car packed.</div>
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The Rehab unit is mostly kids that are there for long periods of time. Believe it or not our 6 weeks was actually pretty short. They deal mostly with traumatic brain injuries, but also other neurological things (like Nat!) too. One of the cool things that the Rehab team does is throw a party for the kids when they get to go home. These kids work SO HARD with these therapists day after day and they all bond so tightly, to just leave with nothing would be so hard on all of them. So all the kids from the unit gather around the nurses station, as many of the nurses and therapists as possible come over, and they sing and have treats and give the kiddo leaving a gift. It is really cool. Quick, easy and yet provides such great closure!</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEigIP2LCjfOncnRhyv7tHGGw39Olk4xDGjQAmkSRa55wuOLwd9-s1vOs0kLoWic31Sqnaoh5WCEsWbRQ0RyTlLdKyAN7dbCfqn_pej-Es-TP9U_-z1YgnUMHJz3v76qiOO_M6FYBexe368/s1600/1010301_10201502438463716_1945259078_n%5B1%5D.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEigIP2LCjfOncnRhyv7tHGGw39Olk4xDGjQAmkSRa55wuOLwd9-s1vOs0kLoWic31Sqnaoh5WCEsWbRQ0RyTlLdKyAN7dbCfqn_pej-Es-TP9U_-z1YgnUMHJz3v76qiOO_M6FYBexe368/s320/1010301_10201502438463716_1945259078_n%5B1%5D.jpg" width="320" /></a></div>
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After Nat's party there were a few papers to sign, discharge directions to go over and balloons to collect... and then we were OFF! </div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhnJ5hVjOAX-K9TaaQbFtB3uU1JyV6zOmkeJmN8izR0di-RA0qiVwkOkjh2i0y2JMg3dj8onLbSYRvriDf8DwknJ_u1dPJM2enLyuagMjXlF5VdkOPUO6KEmn-cG9oHWufavmmTaHjQy3c/s1600/1069934_10201502512545568_2046365754_n%5B1%5D.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhnJ5hVjOAX-K9TaaQbFtB3uU1JyV6zOmkeJmN8izR0di-RA0qiVwkOkjh2i0y2JMg3dj8onLbSYRvriDf8DwknJ_u1dPJM2enLyuagMjXlF5VdkOPUO6KEmn-cG9oHWufavmmTaHjQy3c/s320/1069934_10201502512545568_2046365754_n%5B1%5D.jpg" width="320" /></a></div>
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One of my now so smart moves became apparent next, as the car told me just how NOT happy it was about not moving for 6 weeks. My battery was dead, sigh. It turns out all of those security escorts back and forth to the family house came in handy for more than just keeping me safe in the mean streets of Oakland! When the security team found out my battery was dead they came right over and jumped it for me. Such kind guys! So, after a little delay, this boy and I were ready to hit the road! That picture is both of us sitting in the front seat of the car, ready to get going!</div>
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I was totally exhausted leaving Oakland. The emotion and stress of the last 6 weeks had really caught up with me, along with the NEED to see home, to hold my daughter, for my family to sleep all under the same roof and for me to sleep in my own bed! I was sort of concerned about the drive home, it was a long 250 miles we faced, but I just laid it on the Lord and started driving. The first hour or so was heavy traffic and not so familiar roads, but then it was like the load was lifted. The drive was actually so very easy and almost like someone else was doing it. As we got closer to home and back in our familiar turf I started to get anxious again. That happens to me, I just want to BE HOME, even though I know we have about an hour left. Right then is when a dear friend called me and chatted with me (yes, via my hands free set!) all the way till I pulled into my driveway. He kept me laughing and giggling and made those last miles fly by.</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg4pe8HGPkJL9q64tFUasfSOgDZgS_y6It9CnIKO0Z2L0qR-NY7tAJ59P-lSUanSEzdLOj18rkdpBp9B3WNjgiROFTNLISq6ONVHj5ubsF1xbrttfuDQgBbzrAXBtkhTfXXNwPaQSMb5E8/s1600/1001480_10201503727775948_225398127_n%5B1%5D.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg4pe8HGPkJL9q64tFUasfSOgDZgS_y6It9CnIKO0Z2L0qR-NY7tAJ59P-lSUanSEzdLOj18rkdpBp9B3WNjgiROFTNLISq6ONVHj5ubsF1xbrttfuDQgBbzrAXBtkhTfXXNwPaQSMb5E8/s320/1001480_10201503727775948_225398127_n%5B1%5D.jpg" width="320" /></a></div>
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Then there was this BEAUTIFUL sight. I can't tell you how thrilled my heart was to see out house to pull up to our front door and to walk into MY sanctuary! There REALLY is no place like home!</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhweV0x5spg2PEHq_Fsl079dvFTMn8tMATB4jZHw0ROhTEoULo1EPyOdXdPWbCzk1txIvqw8eBTJvb0zjxVrwf2DSlpuIX1czhMm4rwhaFQLoUmlAUxOypN0kNHxbvElC3_r8XZrigM8NU/s1600/IMG_3590.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="214" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhweV0x5spg2PEHq_Fsl079dvFTMn8tMATB4jZHw0ROhTEoULo1EPyOdXdPWbCzk1txIvqw8eBTJvb0zjxVrwf2DSlpuIX1czhMm4rwhaFQLoUmlAUxOypN0kNHxbvElC3_r8XZrigM8NU/s320/IMG_3590.JPG" width="320" /></a></div>
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And then my cup really did run over. Audrey and Damen had made a sweet welcome home sign for us, my friends and church had filled our fridge with groceries (and OUR kind of food too!), a dear sweet friend had put diner in the crock pot so we came home to a fresh cooked meal and a house smelling divine, and there were even fresh flowers on my dining room table. I am truly so blessed by the people that God puts in my life.</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjtftxAp1EcykRhTF9MHsPAoL4xrbJvEQ-8csnaNx3wET4tcZS6ZIztUfJmqP7Ljh88LtPK3DDOByR2u5qshaREOseGmaj6L8G8hohEiHUA088MVZlngC5yhptWwLr3oab-Mz6MAeL-tlM/s1600/IMG_3588.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjtftxAp1EcykRhTF9MHsPAoL4xrbJvEQ-8csnaNx3wET4tcZS6ZIztUfJmqP7Ljh88LtPK3DDOByR2u5qshaREOseGmaj6L8G8hohEiHUA088MVZlngC5yhptWwLr3oab-Mz6MAeL-tlM/s320/IMG_3588.JPG" width="213" /></a></div>
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Since being home, I can't explain the PURE joy of being here. From the simple things like friends who came over IMMEDIATELY to give hugs and say welcome home, to the bank tellers welcoming me home with smiles and hugs, to the big things, like my family back together as a unit and to freedom of our own home. It is all such a blessing.</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjwnoZL96IIwKhyphenhyphennAzhU4aj8z1_zzcCzioUH4jjUMgo9172MFqVQte6DzWBJjPaK1TX6-MlM8k3LURGfT9pUDpLXCiVGbBxiCXlmcRNG7N8O62GQBQAE34cmGw3lZeKdll2XxY9YBtgb7ok/s1600/Homey+Collage.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="106" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjwnoZL96IIwKhyphenhyphennAzhU4aj8z1_zzcCzioUH4jjUMgo9172MFqVQte6DzWBJjPaK1TX6-MlM8k3LURGfT9pUDpLXCiVGbBxiCXlmcRNG7N8O62GQBQAE34cmGw3lZeKdll2XxY9YBtgb7ok/s320/Homey+Collage.jpg" width="320" /></a></div>
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Being home means so much, like sleeping in a real bed, not the window bed that was 6 inches shorter than I am! Like not hearing the IV alarm sound constantly all day and night long. Like turning the lights out at night so it is actually dark to sleep. Like not having to wear security badges 24/7. Like taking a shower with bare feet, no flip flops. Like having privacy and dignity. Like not having to sleep fully clothes at night! Interestingly it was the little things that drove me nuts there, but the big things that I am constantly blessed by here. I can NOT express how much difference the love and joy and prayers that people pour over us has made in this journey. </div>
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I usually have so many words, and yet this journey seems to have taken them all away from me and left me speechless. But I did write this status update the other day on Facebook with tears of joy and thanksgiving running down my face, perhaps it can express my heart:</div>
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"<span class="userContent" data-ft="{"tn":"K"}">What a day of emotions and love. I can't tell you how my heart feels after brunch with <span style="color: black;">Bea </span>pampering by Heather, walking into my home church for the first time in weeks, a warm welcome from The Rock Harbor Worship Team, hugs from dear friends like Gary & Trish, and finishing the night off with Katy and my PSC family. After the journey we have been on, my heart is humble<span class="text_exposed_show">d and blessed by the love I feel today. There really is NO PLACE like home, and I am SO BLESSED by the amazing people God has put in my life. Tomorrow? You will find me on my favorite beach watching magic happen, and praising Him with tears and joy... I KNOW I won't make it through tomorrow without tears of pure thanksgiving and humility at God's GREATNESS."</span></span></div>
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<span class="userContent" data-ft="{"tn":"K"}"><span class="text_exposed_show">So for all of you I have left hanging there wondering how we are doing, please let me tell you we are FABULOUS and BLESSED. We are redefining "normal" in our house since Nathaniel is a really different boy than when we left (cognitively and physically functioning different), we are learning to be a family again after so much time apart and we are welcoming God's direction into every corner of our world. And I haven't forgotten the lessons God taught me either, I am making changes, following His lead and opening my EVERY breath to Him and his leading. I have a feeling God isn't done with this journey yet. </span></span></div>
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<span class="userContent" data-ft="{"tn":"K"}"><span class="text_exposed_show">We love you and will try to keep you updated in our world! As always, thanks for standing with us in prayer and love and support!</span></span></div>
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Gretchenhttp://www.blogger.com/profile/18149076121047338972noreply@blogger.com0tag:blogger.com,1999:blog-5686075478650713436.post-18220131601607435152013-07-11T14:39:00.001-07:002013-07-11T14:39:01.847-07:00Keeping it REAL... Weigh In!<div style="text-align: center;">
So, you may or may not remember that back in January I set a goal of losing 60 pounds this year by changing my eating habits, and I said that I was going to keep the blog updated with my progress. Well I have sort of not done a great job on updating the blog, but I have been working hard on my goal!</div>
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I have radically changed some of my eating habits this year, I am trying to exercise more (man it is difficult to find motivation to exercise!) and I am tracking my journey. The last 6 weeks were tough in the hospital, but I was sort of amazed when I got home and weighed in. So I thought this would be a good time to update, and make a new commitment to kick it up another notch!</div>
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When I began this journey it was mostly about the pounds to me, but I did record the inches too. Recently I have decided it is about equally important, pounds and inches. I am about 5 pounds off of my yearly goal, but I am way happy with the overall loss, especially in inches!</div>
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So here are today's pictures....</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhdoWg2uTb9R_7_CXkhNeUqWt6jBqEv1P_FkJKA2tTr4FmPPXiG8lm0H9Sjm3vu7Zao068KoUGd1oAM3gs00aFtqkVYkQz6VLIrc-KB4AIgcXaGbcv_rQ3oBMdxX68z3Aw9KnKPwMMB1Ibe/s1600/7.10+Weigh+In.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="215" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhdoWg2uTb9R_7_CXkhNeUqWt6jBqEv1P_FkJKA2tTr4FmPPXiG8lm0H9Sjm3vu7Zao068KoUGd1oAM3gs00aFtqkVYkQz6VLIrc-KB4AIgcXaGbcv_rQ3oBMdxX68z3Aw9KnKPwMMB1Ibe/s320/7.10+Weigh+In.jpg" width="320" /></a></div>
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Yes, I finally got daring enough to put pictures up! It's time to be REAL!</div>
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In the last 6 weeks I am down 11 pounds, 7 inches in the waist and 2 inches off of the hips!</div>
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For the YEAR, I am down 25 pounds!, 9 inches off of the waist and 4 inches off of the hips!</div>
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Oh... and I fit in a pant size I haven't fit in since BEFORE Audrey was born! And Audrey is 10 years old... so that is great too!!!</div>
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It is time to kick this effort up another notch, so I have joined a 90 day challenge and will be working real hard over the next 90 days to loose more inches and weight. I am excited to see where this journey will take me, and I am praying it will take me to a healthier place! </div>
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If you are interested in a journey similar and want to help encourage each other let me know!</div>
Anonymoushttp://www.blogger.com/profile/07703827195954238729noreply@blogger.com0tag:blogger.com,1999:blog-5686075478650713436.post-87620519735644229572013-07-09T12:33:00.000-07:002013-07-09T12:33:22.220-07:00Peach's Neet Feet<div class="separator" style="clear: both; text-align: center;">
A while ago another Spina Bifida mom was talking about these super cool shoes her little guy go from a group called Peach's Neet Feet. Mr. K had been through SO MUCH with his SB, and I thought it was really cool that some one would make him special shoes. But I didn't really think of it for Nathaniel, because at that time he was fairly stable. When we began this current journey with his spinal surgery, I was contacted by someone associated with the group and asked if I would like to apply for shoes for Nathaniel. I thought it might give him something cool to work with on his journey back to heal so I went for it.</div>
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Through a series of issues the shoes seemed to be something that would never actual transpire. I really though it would be cool to give them to him around his birthday, but God had other plans. In His perfect way, they showed up late last night. So Nathaniel got them this morning, his last day here on Rehab and his GOING HOME day!</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhyUItYU2oWJvqKC-LXRNfgD0O5zNh1aQeMpfV1hG17Z2WBFn3cMGcL6U10T1-CfgUUezSGvltCi0eBXE8bReKNMiOZ3KHo2X2fvJuYXeQ5GqXa-KLQDLdhRksAuCA8jIkNVUDJGeLKIfQS/s1600/20130709_081220.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhyUItYU2oWJvqKC-LXRNfgD0O5zNh1aQeMpfV1hG17Z2WBFn3cMGcL6U10T1-CfgUUezSGvltCi0eBXE8bReKNMiOZ3KHo2X2fvJuYXeQ5GqXa-KLQDLdhRksAuCA8jIkNVUDJGeLKIfQS/s320/20130709_081220.jpg" width="204" /></a></div>
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He was REALLY excited to get his special treat....</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEikXYbHLoVQ22ItARO7JHd3KX5iHG6oVwD0x5pZ4KxTEXj35-Vz3gBKo-fJkRUDwI9PKP6YA34ll-Ecy3FCXPgsXqP8piUwgH0Mip2R6V3_w3iYEqb4l0SqSf-4JJAcXM2WrW3wTivNEUFG/s1600/20130709_081226.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEikXYbHLoVQ22ItARO7JHd3KX5iHG6oVwD0x5pZ4KxTEXj35-Vz3gBKo-fJkRUDwI9PKP6YA34ll-Ecy3FCXPgsXqP8piUwgH0Mip2R6V3_w3iYEqb4l0SqSf-4JJAcXM2WrW3wTivNEUFG/s320/20130709_081226.jpg" width="266" /></a></div>
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I gave him the shoes one at a time so he could really appreciate the uniqueness that is in each design.</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh2UMr_k1pWdMzU7LtzBKBJoUm71jb4IGKJ5PfhSQEy0UDhG_y5pswuWFjjQ1lmOzn2utZiOq8RyH9Y3W8IOVxwVihZ3kBVsHpeNF8ef2MZPrEMs-iWiuVCYy8co-AYwduSTtcX6D4yo9PQ/s1600/20130709_081446.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh2UMr_k1pWdMzU7LtzBKBJoUm71jb4IGKJ5PfhSQEy0UDhG_y5pswuWFjjQ1lmOzn2utZiOq8RyH9Y3W8IOVxwVihZ3kBVsHpeNF8ef2MZPrEMs-iWiuVCYy8co-AYwduSTtcX6D4yo9PQ/s320/20130709_081446.jpg" width="244" /></a></div>
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And he was so EXCITED each time he turned the shoe and saw something new.</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiVI-PFDYJYmAcT5scgx6JKGhrHOwi3ESHtji8Z3VKFI7XP9_ajFuZJGrrgeEHnwhWgjdPxbnZPxyFDJu04bIAsZl__2cb48B2khA8aQpbpJQPvjFooVZXHR7S3QK6K72UTS5NlwqsA5Vyp/s1600/20130709_081731.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiVI-PFDYJYmAcT5scgx6JKGhrHOwi3ESHtji8Z3VKFI7XP9_ajFuZJGrrgeEHnwhWgjdPxbnZPxyFDJu04bIAsZl__2cb48B2khA8aQpbpJQPvjFooVZXHR7S3QK6K72UTS5NlwqsA5Vyp/s320/20130709_081731.jpg" width="186" /></a></div>
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When I was filling the paper work out for the shoes I was REALLY concerned about the size and style because in the past the ONLY thing that fit were the Converse Easy Ons. So you can imagine my absolute delight when the shoes fit PERFECTLY over his new braces! </div>
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So when we applied there was a form that we filled out asking all kinds of questions about what Nathaniel likes and this is what the fabulous artist did from Nathaniel's information:</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgu3x7FsFHT3RPEu-kr9SVl1WULt9s0sbwIrNdFJtV7wmEcIAwZuMUJ9JqveNxf3rThCKO9HbSzNMLo0pI68YsyLthJPX7fHC0C_55_HsI4VJ0r5c0yZKY7IMtiP_J5gJ2DnAl-ToC3v2gu/s1600/IMG_20130709_081156.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"></a> </div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgHEDPmIfpzIc5WxJD_dryB0wQleIDoywGdF9E4AhyphenhyphenOGFcuyK1M_bFJn6mWmnfzjLfNNeZQCMG54fpf2Xe-WOHdRK1HPjQ7RtWZEqJ5y8x7sSH_GrzGG9-49naEWIrxYc2T0aCM7FsFT8k1/s1600/7166_479791632099877_156938754_n%5B1%5D.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="213" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgHEDPmIfpzIc5WxJD_dryB0wQleIDoywGdF9E4AhyphenhyphenOGFcuyK1M_bFJn6mWmnfzjLfNNeZQCMG54fpf2Xe-WOHdRK1HPjQ7RtWZEqJ5y8x7sSH_GrzGG9-49naEWIrxYc2T0aCM7FsFT8k1/s320/7166_479791632099877_156938754_n%5B1%5D.jpg" width="320" /></a></div>
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My little sports man... he loves sports of ALL kinds so here is a jumble of balls.</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjgWtA9mUwKpjGRmlQX-8XuIcCNaOfYy3yrrKVDB-We1Qnq0_OoLc6mcOXqODoKLMzp2nz0hQnEFU3h4MhbCdDIQNwApKveD1u7wJ3jLWoD6w98KltoPvi2oAQ8Ny53bGc1pOXYbchZzpsj/s1600/8607_479791595433214_1508404533_n%5B1%5D.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="213" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjgWtA9mUwKpjGRmlQX-8XuIcCNaOfYy3yrrKVDB-We1Qnq0_OoLc6mcOXqODoKLMzp2nz0hQnEFU3h4MhbCdDIQNwApKveD1u7wJ3jLWoD6w98KltoPvi2oAQ8Ny53bGc1pOXYbchZzpsj/s320/8607_479791595433214_1508404533_n%5B1%5D.jpg" width="320" /></a></div>
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And of course... my little man LOVES to surf, so here is a fabulous collection of surf boards!</div>
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Nathaniel's journey is Spina Bifida, so here is his SB awareness ribbon.</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjy-tb2B1-au2iu2tO0ynvOtl1BGWN60Zbx0Pb4bkUOVsYyViiQs75CCTf1bZZRbQ1mPpiHhMB61yfIMYSz3XAQzAWM1KAvjOr-FMxvMdnptVyBGQxgysXARgq7Xgnz_RuZ1vHx1ftys6LK/s1600/1012119_479791602099880_716542177_n%5B1%5D.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="213" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjy-tb2B1-au2iu2tO0ynvOtl1BGWN60Zbx0Pb4bkUOVsYyViiQs75CCTf1bZZRbQ1mPpiHhMB61yfIMYSz3XAQzAWM1KAvjOr-FMxvMdnptVyBGQxgysXARgq7Xgnz_RuZ1vHx1ftys6LK/s320/1012119_479791602099880_716542177_n%5B1%5D.jpg" width="320" /></a></div>
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We always rest in the Lord, and Nathaniel's favorite football team is the Baltimore Ravens, so the toes of his shoes represent that.</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiqwP4jPlvun30W2zTWRKnJm-SeEZ0M6t8ODchhl2Xour45hyphenhyphenf8OvWooJFq_K5vmTaHw5hndsvK-0R6wmJdbjR2vikIq1eSyhNHECMTvMYhXFcGJUfE9I0mTvtONzBrMAxZAUuF_Lk9aqTU/s1600/1013978_479791598766547_1300184537_n%5B1%5D.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="213" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiqwP4jPlvun30W2zTWRKnJm-SeEZ0M6t8ODchhl2Xour45hyphenhyphenf8OvWooJFq_K5vmTaHw5hndsvK-0R6wmJdbjR2vikIq1eSyhNHECMTvMYhXFcGJUfE9I0mTvtONzBrMAxZAUuF_Lk9aqTU/s320/1013978_479791598766547_1300184537_n%5B1%5D.jpg" width="320" /></a></div>
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And of course... His name, in his favorite color! </div>
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I am amazed by these AWESOME shoes!!</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjRHhjkhC5g5_ncHtqwg9YXjlNary6UblAw0WtFoWHmwfThGFnoE9bP38wMnoq8NqZe30W26FEoDbGkWfHTRWZ0_4ZVBBidOXFC6vEONUnCpoobO2HZSE_JVvVY_C7aFnOHLIiHw3XUnoQ3/s1600/IMG_20130709_095332.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjRHhjkhC5g5_ncHtqwg9YXjlNary6UblAw0WtFoWHmwfThGFnoE9bP38wMnoq8NqZe30W26FEoDbGkWfHTRWZ0_4ZVBBidOXFC6vEONUnCpoobO2HZSE_JVvVY_C7aFnOHLIiHw3XUnoQ3/s320/IMG_20130709_095332.jpg" width="219" /></a></div>
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And Nathaniel is already ROCKING them at his final therapy sessions today!</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiUO8uhdbIpu65G_rybyzXajcf9gdWAwhu7x8wkXgJJ-LDFC4O6kFz_EoJRMjVuOMXDBkTqAEQpnq3PiMzjr2Fc88TD-qEnYZtV5sC8etm8IgBuVgfRVGAh6GuZnMSRGycbo1syyrrEaoZT/s1600/IMG_20130709_114612.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiUO8uhdbIpu65G_rybyzXajcf9gdWAwhu7x8wkXgJJ-LDFC4O6kFz_EoJRMjVuOMXDBkTqAEQpnq3PiMzjr2Fc88TD-qEnYZtV5sC8etm8IgBuVgfRVGAh6GuZnMSRGycbo1syyrrEaoZT/s320/IMG_20130709_114612.jpg" width="320" /></a></div>
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If you are interested in finding our more about this AMAZING organization, go check them out on Facebook:</div>
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<a href="https://www.facebook.com/PeachsNeetFeet?fref=ts" target="_blank">Peach's Neet Feet!</a></div>
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THANK YOU!!!!!</div>
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To all who helped make this unique and special gift happen!</div>
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<br />Anonymoushttp://www.blogger.com/profile/07703827195954238729noreply@blogger.com0tag:blogger.com,1999:blog-5686075478650713436.post-53352232628220413072013-07-09T07:33:00.000-07:002013-07-09T07:33:59.023-07:00Hidden Treasures<div align="center">
I sure have been a "Debbie Downer" recently haven't I?</div>
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I don't mean to, it is just that journey had gotten to the point that it totally overwhelmed my spirit. But Just like he always does, God brought the rainbow. </div>
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But before we head out for good, I do want to praise the Lord for the treasures along the way... Things I feel like my recent gloom has prevented me from praising Him for enough.</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhy-tZn0ArIlmcluS3XeCtYl5FqKyduIPC3oNCiFaGda2iZq6RzDUUhNHHOS-TC9-A5_zBi54ryCwc9aqbnRjBp9FJkhRpjB2BAbdBE0K74c8AmkFvTP5EHLIyj3UmjpW9bSElEPx2Vnp9p/s1600/room+3.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhy-tZn0ArIlmcluS3XeCtYl5FqKyduIPC3oNCiFaGda2iZq6RzDUUhNHHOS-TC9-A5_zBi54ryCwc9aqbnRjBp9FJkhRpjB2BAbdBE0K74c8AmkFvTP5EHLIyj3UmjpW9bSElEPx2Vnp9p/s320/room+3.jpg" width="320" /></a></div>
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Thank you Lord for a safe bed. When Nathaniel first came out of surgery he could not stand AT ALL on his own. But he kept forgetting that and trying to get up out of bed. Someone had to be with him CONSTANTLY, but when family went home and it was me alone, that was too much. With this bed, I could zip him in, clip the locks and walk away. I didn't have to worry about his safety and that was HUGE. 24/7 bedside vigil is just impossible for one person to do alone!</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhsU_9V0fdcBLDFVKUidHZXUZe93rxOYX-I86xJD4XKzr6Cm5OhokLsKT158Oqm0GiUsI57_FwttLgyaim3oW6J1nUUx0wD7JEJzVqUDzZt68-Tby34R7gwYKxfDJgccohcRg-qgtNDAcgT/s1600/17525_10201482933656108_1447523461_n%5B1%5D.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhsU_9V0fdcBLDFVKUidHZXUZe93rxOYX-I86xJD4XKzr6Cm5OhokLsKT158Oqm0GiUsI57_FwttLgyaim3oW6J1nUUx0wD7JEJzVqUDzZt68-Tby34R7gwYKxfDJgccohcRg-qgtNDAcgT/s320/17525_10201482933656108_1447523461_n%5B1%5D.jpg" width="320" /></a></div>
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Thank you Lord for nurses after your heart. This nurse was one of the BIGGEST blessing of our whole trip. She was AMAZING. She loved on us. She took AMAZING care of Nathaniel. She went to Trader Joes and brought us real food. She got batteries from her house for Nathaniel's remote control car. She hugged on me when I couldn't handle anymore and broke down in tears. She fought for what we needed. She even brought me fresh nectarines off of her tree. Nurse Debbie is a jewel of God, and an amazing sister. We are SO blessed that she was our primary nurse!</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhvl65sdPvv7aT-b6jE9zArzFnpJrcX2BUNxslj_iHgmeUMesFMUqGdh4lBYObCjsnF-2G7J4psVlojhsHrZ0gxoVTPDtQaX75EbyoaHHjh5_8z13V9NRA-tWNZxcSSVlN0Zud0R5kXbar9/s1600/1000151_10201494626068411_1653269449_n%5B1%5D.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhvl65sdPvv7aT-b6jE9zArzFnpJrcX2BUNxslj_iHgmeUMesFMUqGdh4lBYObCjsnF-2G7J4psVlojhsHrZ0gxoVTPDtQaX75EbyoaHHjh5_8z13V9NRA-tWNZxcSSVlN0Zud0R5kXbar9/s320/1000151_10201494626068411_1653269449_n%5B1%5D.jpg" width="320" /></a></div>
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Thank you God for simple things... like AMAZING instant coffee so I had something to look forward to every morning when I woke up. Coffee here was close to $4 a cup, which is RIDICULOUS, so the Via that a dear friend gave me was a life saver. No one waned to face me in the morning without at least one cup in me!</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEji9RxafuV7xMtKCKQTPXmzXBc6XUq-h8yq73beMy4SIknWQS-Oc41awHfvG5B229A3kmXXHWqVuPc33frpj9sEWoITEirPMafTA0iZHbJqluZsxdLd0foXZDrwHS1NqyQt95KXSL60fDz_/s1600/6.11.13+Soccer.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEji9RxafuV7xMtKCKQTPXmzXBc6XUq-h8yq73beMy4SIknWQS-Oc41awHfvG5B229A3kmXXHWqVuPc33frpj9sEWoITEirPMafTA0iZHbJqluZsxdLd0foXZDrwHS1NqyQt95KXSL60fDz_/s320/6.11.13+Soccer.jpg" width="320" /></a></div>
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Thank you Lord for a GREAT Rehab therapy team, but especially this AWESOME Physical Therapist that pushed Nat so hard without him even realizing he was working! This is the reason we stayed here so long, so Nathaniel could get this amazing therapy multiple times a day. I KNOW this is one of the reasons he is making such great gains.</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh-CPesKzi_InTK2CUDng98iPpf_RxCLun_8Jmc3BzWsTi_ZiCcqTsMHeWRZ8vWGythmjAvevepzXX7Wz0gPr3dqLz-m_FF558mwYrDTzpu0rjwz0U7kzWS_mL9AHCtbeYykqhyphenhyphenDzh6nx0x/s1600/943531_10201406934596179_374855880_n%5B1%5D.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh-CPesKzi_InTK2CUDng98iPpf_RxCLun_8Jmc3BzWsTi_ZiCcqTsMHeWRZ8vWGythmjAvevepzXX7Wz0gPr3dqLz-m_FF558mwYrDTzpu0rjwz0U7kzWS_mL9AHCtbeYykqhyphenhyphenDzh6nx0x/s320/943531_10201406934596179_374855880_n%5B1%5D.jpg" width="320" /></a></div>
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Thank you Lord for AMAZING friends that made the LONG trip up to visit us while we were on this journey. These trips were pure breaths of fresh air. Bea, Tammy, MeLissa and April, you will never know how deeply your sacrifices touched my heart and helped my spirit.</div>
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Thank you Lord for GREAT activities and blessings to the children being treated here! From personal screenings of Monsters University, to Joy Jars delivered by Chicago Bears football players, to sweet gifts from Child Life, to this amazing visit, and so much more. There were always special things for the kids to be blessed with while they are here.</div>
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Thank You Lord for this court yard, which became my sanctuary while we were here. This girl needs her fresh air, and God scenery and space, and this court yard was a safe place that I was allowed to take Nathaniel with me to get those things I needed. I don't think I could have survived here without this place. I laid on the benches here and talked on the phone or listened to my iPod for hours. Nat played here daily. And it was just our sane place to go.</div>
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Thank you Lord for new friends, brothers and sisters in Christ, who gave freely of their time to bless this family they had never heard of before. And especially Mina, who continues to bless me with her friendship and support all the way through this journey! What a treat to meet, be blessed by and bless others through our storm.</div>
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And most of all, Thank You Lord, for EVERY SINGLE individual who made this journey with us. From brand new friends on line, to brothers and sisters from church, from dear sweet friends to community members who saw our story and joined with us, from family to the strangers we met on the elevator that we stopped and prayed with. Thank you Lord for EVERY single prayer that was uttered on our behalf, for every tear cried, for every hug given, for every text message, for every Facebook message or comment, for every phone call and for every conversation. Thank you Lord that every step of the way we were wrapped in YOUR family and you NEVER left our side. Without the outpouring of love, support and prayer we have gotten we could never have completed this race.... and the finish line for this leg of the race is right there in front of us!!</div>
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So right now, in this moment, I am on my knees praising the Lord, for He is SO good.... ALWAYS!</div>
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Anonymoushttp://www.blogger.com/profile/07703827195954238729noreply@blogger.com0tag:blogger.com,1999:blog-5686075478650713436.post-1761743663652632152013-07-08T08:41:00.005-07:002013-07-08T08:41:59.063-07:00Sunday Blahs<div align="center">
I can't not tell you HOW happy I am that yesterday was the LAST Sunday we will be here for this journey! I do think that Sundays are the hardest day to endure here for many reasons. Some one said to me yesterday that it sounded like I have lots of little things adding up to make a big blah day, and I totally agree!</div>
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First off, on Sunday I miss my church family more than any other day of course. I miss a Spirit filed time of worship with other believers. Not that I don't listen to worship music almost constantly on this journey, but it is different with my family all around me. Thankfully, I don't miss message, as our church is fabulous at getting message up early Sunday afternoons. And I miss all my HUGS from church. Who knew I fill my hug tank up at church each week? But man, am I running on dry right now!</div>
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Also on Sunday Nathaniel has NO therapy! A full day of entertaining a bored child in the hospital, not so fun. The last two weeks the weekend doctor has let me take Nathaniel to the family house for a few hours each Sunday. It was a blessing to get OUT for a bit. Today the doctor heard me say we were heading over there and she told me NO! I was seriously in tears. I tell you, it's the little things that make or break hospital stays. Today it was the inconsistency that sent me over the edge. A policy should be a policy, it shouldn't matter WHO you ask, the answer should be the same. Unfortunately many things around here have depended on who you ask, and that has been very difficult for me to tolerate. Don't get me wrong, the rehab here has been fantastic, it's the little things that are driving me crazy though.</div>
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Between those two little things, and some personal stuff that is weighing heavy on my heart I had a difficult time dealing with pretty much anything yesterday. I think I have definitely reached my breaking point here. I was plugged into my iPod almost all day, just filling my heart with praise and worship, and desperately trying to find the grace to walk through the day in a manner I could be ok with. I have a feeling this will be a struggle for the remaining days here (it is early in the morning, and yet I have already been in tears a few times today). Please, if you have anymore prayer energy, pray that I can make it through this is in a light that continues to bring glory to God, not in a crazy mama bear manner! I so don't want to be that mama bear, but I am having a hard time keeping her down!</div>
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Today is back to the grind for Nathaniel, he has 8 therapy appointments today! The final push to get him strong before we head home some time this week. I plan to keep myself busy and distracted in hopes that I can remain calm and full of grace, we shall see. Oh, and I plan to search high and low for the missing mail package! Found the missing DS this morning, just one more missing item, and I can go home with everything!</div>
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As, always, thank you for joining us in this journey. We love you and couldn't be where we are without your prayers! </div>
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Anonymoushttp://www.blogger.com/profile/07703827195954238729noreply@blogger.com0tag:blogger.com,1999:blog-5686075478650713436.post-711282543545602112013-07-06T13:16:00.000-07:002013-07-06T13:16:01.857-07:00Getting there....<div align="center">
The final days of this journey are getting incredibly hard, but we are trying to hang tough. We know that we will be home in a matter of days... I pray! No set backs, I really can't handle a set back right now!</div>
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On the 4th of July we had a special visit from some really sweet, friends of the heart that we don't get to see very often. April is an amazing girl that I just connect with at a heart level who happens to have a Spina Bifda Rock Star like I do! Blake is 11 and he and Nat are buds. We don't get the opportunity to see each other often, but when we do it is always a sweet time! April, her dear hubby Dave, Blake and their littlest guy came to see us on Thursday!</div>
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These two boys are AMAZING at what they endure on their journeys and yet remain so pure in their spirits. God continues to do amazing works in these boys! </div>
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The boys played football with Dave while April and I got to talk. It was so wonderful to see these dear precious friends.</div>
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The rest of the 4th was a roller coaster that I don't care to rehash. I can just say, please pray for the next few days until I can get home. This journey is taking it's toll on all of us. Thankfully it ended well with Nathaniel and I curled up in the window watching the fireworks all over the Bay Area. It wasn't our normal 4th of July, but at least it was something!</div>
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**WARNING... GRAPHIC IMAGES TO FOLLOW*****</div>
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So, also in the last few days we have got all the dressings off of Nathaniel's back, and I thought we would show you the journey he has been on for the last 5 weeks.</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjulq8sQ7vYLox7bM3jbQmHmGRvhHcbe2DO5s60wfFLww-qmfeeXQarufF9RPCu1b7Z9Tomvup1gxnss8ZCQ_sSHMz8cz7tll9jwgdlPetelKxaKQyX8A-lgdZco2MF9W8IkXFPRwKXvUGn/s1600/scar.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="106" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjulq8sQ7vYLox7bM3jbQmHmGRvhHcbe2DO5s60wfFLww-qmfeeXQarufF9RPCu1b7Z9Tomvup1gxnss8ZCQ_sSHMz8cz7tll9jwgdlPetelKxaKQyX8A-lgdZco2MF9W8IkXFPRwKXvUGn/s320/scar.jpg" width="320" /></a></div>
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These pictures were taken the night before surgery, June 4, 2013 These are the scars that Nathaniel had from his first closure done before he was born.</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjyL8LITyqLpWj2WOar6xQZZjdNC90-92aT83gJZ84q9h8xBSi4iJ4_woT2sl86sTyHipya8QCfjdy3WWsuKKDKHU_iucTZXZ5W_asvThRcvHsBLwjI_Q_Ou7c8PodMLoaF8SScIvZxf4rH/s1600/IMG_20130615_095104.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjyL8LITyqLpWj2WOar6xQZZjdNC90-92aT83gJZ84q9h8xBSi4iJ4_woT2sl86sTyHipya8QCfjdy3WWsuKKDKHU_iucTZXZ5W_asvThRcvHsBLwjI_Q_Ou7c8PodMLoaF8SScIvZxf4rH/s320/IMG_20130615_095104.jpg" width="320" /></a></div>
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This was taken on June 15th, 10 days out from surgery.</div>
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Dr. Sun had told me that he would have to cut as high us as Nathaniel's shoulder blades, so I was THRILLED to see how small of a cut was actually made. I guess it is all relative.</div>
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This picture was a few days later on 6/20/2013, I am amazed how quickly Nathaniel was healing. </div>
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This was taken on the 4th.... </div>
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All the dressings off, all the sterie strips gone, and most of the stitched dissolved. I am THRILLED with the healing. and I am actually really thrilled with how relaxed the whole scars looks. I think it is actually going to heal better than his first closures! AND the side scars that were pulling so badly have relaxed some too in the process. God is amazing. </div>
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We ran into Dr. Sun while we were outside playing the other day and he gave Nathaniel and I some AWESOME news.....</div>
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Drum roll please......</div>
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Dr. Sun cleared Nathaniel to SURF starting next week!!!!!</div>
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We will make the opening day of PSC!!!</div>
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God is AMAZING!!!!!!! </div>
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Thank you all for standing with us in prayer!</div>
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Anonymoushttp://www.blogger.com/profile/07703827195954238729noreply@blogger.com1tag:blogger.com,1999:blog-5686075478650713436.post-42370388461843044652013-07-03T10:42:00.001-07:002013-07-03T10:42:46.439-07:00Counting DOWN!!!<div class="separator" style="clear: both; text-align: center;">
We have been counting days for quiet some time, but now we are OFFICIALLY counting DOWN to GO HOME TIME!!!</div>
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Can you tell I am a little bit excited???</div>
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But we got one step closer to going home today. I was given our first two weeks of therapy appointments for home!! I mean, if they want us to keep the appointments that they made at home, then they have to LET us go HOME, right? That is my story and I am sticking to it. </div>
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This boy is getting TIRED of hanging here. But he is still working SO HARD on all of his therapy and strengthening. Don't let that face fool you either...he had just finished TORTURING his momma with tickles and what not. The picture was to distract him from tickling me more!!</div>
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While Nathaniel worked hard at therapy today my dear friend Tammy came up to kidnap me! Seriously. I got the "one hour till you are being KIDNAPPED" text to prove it. She took me up to Berkley and we walked around the OCEAN for about an hour. It smelled like an ocean, and the wind was divine, and there were ocean like critters and what not... but that water just looks WRONG and there were WAY too many industrial things in the wonderful ocean. But it was so nice to be near the ocean. Filled my soul back up. </div>
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the contradiction in the surrounding. We had a wonderful time of fellowship and fun and yummy food. And then, Tammy treated me like a princess! We found a place to get my hair cut!!! I was SO SICK of the nappy way my hair was, but I hadn't had time to deal with it before we came up, and it just didn't seem important before, but today, it was just on my heart to do it. </div>
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So momma got a cute new do and is feeling a little better about herself. </div>
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Tammy and family also got Nathaniel a present. She didn't get to see him, as he was in therapy the whole time she was here, but she left his present. He was totally excited with it when he opened it later! And I am sad to say, he beat me at Mexican Train Dominos. I don't seem to be able to win any board games this trip!</div>
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Another exciting thing happened in the late afternoon. A player from the Chicogo Bears walked into Nathaniel's room with a box, a story, a prayer and a gift. It was way cool!</div>
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Kyle was his name (I am pretty sure) and he had a box in his hand. He shared a story about his "little friend" Jessie Joy Rees who battled cancer, and yet through her journey wanted to bring joy to other children who were suffering. So she and her family came up with the idea of Joy Jars. Inside the box was a jar full of goodies for each child here. After Kyle shared his story he asked if he could pray over Nathaniel and then gave Nat his gift. It was a short but touching visit.</div>
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So this is Nathaniel with his Joy Jar. It is very touching how many special things the hospital has for the kids here!</div>
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So... </div>
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we are another day closer to HOME and we couldn't be more excited!</div>
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Please pray with us that everything stays on tract and we get to actually GO home on the 10th! </div>
<br />Anonymoushttp://www.blogger.com/profile/07703827195954238729noreply@blogger.com0tag:blogger.com,1999:blog-5686075478650713436.post-41494174384971409082013-07-02T15:52:00.000-07:002013-07-02T15:52:04.819-07:00Mommy Escapes<div align="center">
Sunday is a day of rest around here. No therapy, no appointments, no real schedule to keep.<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjNU9f0Esf5CqD7rOoJb6tWqriqVwxTQ3HQXsTV412e4RRPawyhkvBAGNa-Qcz2p9UZAyam-69rZs24K4uq42M0bsutjrpgWA-W8mTuFcos9YSN4KvlnEULsxni-K8va4vHAerprkiRqJbV/s612/995717_10201445363356874_798247472_n%5B1%5D.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjNU9f0Esf5CqD7rOoJb6tWqriqVwxTQ3HQXsTV412e4RRPawyhkvBAGNa-Qcz2p9UZAyam-69rZs24K4uq42M0bsutjrpgWA-W8mTuFcos9YSN4KvlnEULsxni-K8va4vHAerprkiRqJbV/s320/995717_10201445363356874_798247472_n%5B1%5D.jpg" width="320" /></a></div>
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So we had a REALLY hard day on Sunday.<br />
We blew bubbles....<br />
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And played board games in the sunshine.</div>
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And looked at the sky while singing praise and worship songs REALLY loud. <br />(Yes we got some funny looks for this one)</div>
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And we even played a ton of football even though it was BLAZING hot!</div>
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Monday was back to normal... kinda.</div>
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Nathaniel had a busy day of therapy ....</div>
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And momma got mommy napped!</div>
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Mena, one of the ladies from the Black Sheep that visited us a few weeks ago came up and took me out for a while. </div>
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She took me to Jack London Square, where I have never been before. I was a bit apprehensive that is would be filled with people, but honestly it was totally abandoned which was totally fine with me!</div>
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We walked all around and checked out the cool art work everywhere. <br />
I really loved this mural and the heading on it:<br />
"Peace Making, the Power of Non-Violence<br />
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And this section of tiles spoke to my heart too. It was really fun to see the great artwork on display in a town like this. </div>
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After we walked around for a long time we had some lunch and wonderful fellowship. It was really nice to get out for a while and hang with an adult! I am so thankful that Mena took time out of her life to come up here and hang with me for a few hours. After all, I am just some sister in Christ that she has met one other time. But God was with us the whole time and we had some wonderful fellowship!</div>
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And so Monday ends....</div>
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And we have NINE MORE DAYS!!</div>
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Nope, we aren't counting down or anything!</div>
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Anonymoushttp://www.blogger.com/profile/07703827195954238729noreply@blogger.com0tag:blogger.com,1999:blog-5686075478650713436.post-7107849687790790382013-06-30T01:58:00.000-07:002013-06-30T01:58:54.535-07:00The Ugly Real<div align="center">
<span id="yui_3_7_2_1_1372528081346_6211">So often here I focus on the journey, and I tell myself I am being real, but in the last week or so I have been struggling with HOW real to be. This journey we are on is about Nathaniel, and his healing and the AMAZING things God is doing in this little guy. But God has decided to make this journey about more than that for me too. God is showing me many things about ME that I don't want to see, that I am struggling with and that HURT. </span></div>
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Then the question becomes what do I do with those things He is showing me and teaching me? Am I real? Do I share them? Or do I bury those lessons and struggles in my heart, put on the mask and go on with life. Often I do just that, wear a mask and go on with life. But more and more I don't think that is what God has for us. </div>
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There is this Casting Crowns song that totally speaks to my heart. I DO NOT want to be a <em>happy plastic person</em>. I do not want to wear the mask. I don't want to <em>trade the alter in for a stage</em>. I NEED to dare to let you see <em>the truth behind the person that you imagine me to be</em>.<br />
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Check out the Song <a href="http://www.youtube.com/watch?v=gzKOrlPuWzo" target="_blank">HERE</a> so you see what I mean, then I will spill my heart. No more masks for this girl today!<br />
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I started to write a quick email to a friend today to update him on Nathaniel and share a blog link, instead all of this PAIN from my heart poured out into words. It kinds surprised me, because I keep stuffing it back down, but he is a prayer warrior... so I guess God needed me to spill it somewhere safe. After thinking about that email for a while, I think God wants it spilled further. I NEED to be real.<br />
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I love all the support and prayers we have gotten, but I cry every time someone tells me I am strong, or something along those lines. Seriously cry. I am SO NOT. God is strong, and God is with us, he carries me often. But any strength is not mine and that has made me stop to think what I am doing wrong that people don't see God in me when he is ALL that is in me? And it makes me think that I am wearing the masks again, and I don't want to wear masks anymore! So it is time to let it all out again.<br />
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Going into this journey my focus was
90% on Nathaniel and his part in the journey, as I think would be normal right?
There was so much to consider for Nathaniel and his journey. I was concerned about some things at home, and money and that kind of think, but
I really didn't think of ME in the journey. I didn't think of sitting here day in and day out without the busy of life to distract me. I didn't think of all the time that I would be deep in His arms drinking from him. And I didn't think of all the lessons God would have to teach me in this time. After all, He really has me in a place of being a captive audience!<br />
<br />
As we endure more and more I am
finding myself slip into a DEEP depression. Really, haven't been this bad in
YEARS. I have so little to do here, but I find myself not able to do even that little. God is just working me over daily. I have almost filled an entire journal in my time here as I have prayed through so much that He is laying on my heart. I guess I didn't realize some things about myself.. like the comfort I
take in my daily routine, or how much I depend on human touch in my day, how
much I like being connected to people (it is SO lonely here) or how terrified I
really am of "strange places"..... I am not a person I am the least bit happy
about being right now.<br />
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I know some of the problem I am having right now is my <a href="http://en.wikipedia.org/wiki/Agoraphobia" target="_blank"><strong>Agoraphobia</strong></a><strong>. </strong>As much as I hate it, there is no denying it. It controls so much of my life. I just have the HARDEST time in new places, among strangers and in unpredictable settings. I am so uncomfortable here it is all I can do to function daily without loosing my mind. I have been here for 26 days now and I have not been outside of a 2 block radius! Seriously. Have not. Hospital, Out Patient Center, Parking Garage and Family House. Those are he only places I have been. I am SURE that is not helping my overall well being, but the truth is I am TERRIFIED to attempt anywhere. I have not had a single panic attack on this journey (praise the Lord) and I just am terrified to push the envelope. New people, new routines, new everything, it is all I can do to process all that I HAVE TO, I just can't introduce anything else. So that means I have to meet our every need in those few spots... it sure has been interesting and smothering in some ways. But not so smothering that I dare venture out into that big mean world out those windows.<br />
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Another area that God is showing me is that of human contact. I have always known that I am super close to many of my friends, and church family. I know I am a human touch kinda girl, anyone who knows me at church knows that as I take any hug I can get. But what I didn't realize is how that affects me as a single girl of God. On this journey I am SO far away from all I am used to drawing strength from, and I am weak from it. My fuel tank is constantly hovering near empty. But should that be the case? Shouldn't I be able to fill that tank up form the Lord? Yes, I understand he sends me my friends, but as a single girl in Him, I should take far more nutrients and filling from Him and less from those around me. It has been interesting having to go such long periods of time without a simple hug, and in that He has shown me much. I am ALWAYS a music girl, but this iPod has never been far from me on this journey. I am CONSTANTLY praising him, and that is filling me up some. I am also DEVOURING his Word, which is kind of unique for me. I usually do well to do my morning reading, but right now, I am reading constantly. It will be interesting to see how this continues (or if it does) at home. And through this very topic God has been speaking to me about my broken marriage and what I need to do there. He has been very specific about the path I need to walk as soon as I get home. Not looking forward to this path, but if He commands it I will do it. All to say, I MISS my hugs, but God is showing me that I use them too much to fill holes He should be filling. <br />
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The other thing that He is showing me that doesn't surprise me, but at the same time does, is my PASSION for serving Him. My heart SERIOUSLY BREAKS every time that I miss a regular serving time. Not for me, I mean I miss my friends and stuff but not so much missing the hard physical labor that we do! But my heart breaks that my hands and feet are not bringing glory to Him in this time. I KNOW He has provided hands and feet to do the work (and more) that I usually do... but mine just ACHE during those times. It is crazy. I KNOW I am called to serve Him, but I REALLY REALLY know now. And He is talking to me about HOW and WHERE I serve Him. I think He is proving his point, but good grief! Enough already, right?<br />
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I know it seems like we are on the downhill side of
things looking in from the outside, but honestly? Right now I wake up not sure
how I am going to get through each day. I cry too much, I can't motivate myself
to do anything... I just really DON'T like the girl I am
right now... I feel like God is probably even annoyed with me. I should be
shouting from the roof tops at how awesome He is for bringing my boy through
this in such glory, and all I do is beg Him each day to carry me through the
day. My friend said it so well tonight, Nathaniel is on this journey of rebirth in some ways, and healing and I am here to support him and make sure his needs are met, shouldn't that be enough? Couldn't God wait on the rest? But obviously not. Obviously He has a FAR bigger journey to take us on than I could have ever imagined. I started this journey thinking it was about Nathaniel and what God would do through him and with him. Instead God has made it about a rebirth of sorts for both of us. Cuz that is just how God rolls. <br />
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Ok... So I know this was really just processing out the most recent wrestling match with God for me, but I am hoping that in some way it speaks to someone else too. And more than anything, I hope that it helps people to see why I am constantly saying, I am just a girl, He is the strength. </div>
Anonymoushttp://www.blogger.com/profile/07703827195954238729noreply@blogger.com0tag:blogger.com,1999:blog-5686075478650713436.post-60015704742345438242013-06-29T16:26:00.000-07:002013-06-29T16:26:09.505-07:00A Birthday Update<div class="separator" style="clear: both; text-align: center;">
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(sign delivered by Child Life Specialist at CHO)</div>
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So, in case you somehow missed it, yesterday was Nathaniel's 13th Birthday! And even though we were in the hospital STILL, we celebrated in style!</div>
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First thing this morning his OT brought him an AWESOME hat that her wore all day long</div>
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In the morning he had PT, and speech, and we got the GREAT news from his doctor that he was cleared for a SHOWER! Yes, that stinky boy hadn't had a shower since June 4th.. .24 days.... yea, he SO NEEDED it and his back is now healed enough to have running water (no soaking water yet, but running is now OK). So for OT Nathaniel got to take a SHOWER in the real shower! That was a birthday treat for both of us!</div>
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The other good thing from the medical end of life is that Nathaniel's bowel and bladder have balanced back out to what is more normal for him!! We are FINALLY back in cloth diapers! Which of course is delightful in the hospital (you see the sarcasm font, right?) but it is so much better than disposable and completely stripping every time we cath! We do have to run a 24 hour urine test starting today, but that is more to check the chemical components, since function level he is back to normal. I am really happy about this development, I was starting to get really worried that it wouldn't balance back out to something we were used to.</div>
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In the afternoon, for his therapy session, Nathaniel got to go on an OUTING! He and his therapist and one other patient went on a Fun Friday outing to a Pizza place for Nathaniel's birthday. They worked on ambulation in public, using his new equipment in public and worked on social skills. Fun times! He came back in high spirits to a special treat at the hospital!</div>
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Pixar is a big supporter of Children's Hospital Oakland, and they have a new movie out, Monsters University! The kids at the hospital all got a cool (reusable) goodie bag with stuffed animals and baseball caps, and there was a screening of the movie for everyone! You could go into the group area to watch it, or you could watch it on the TV in your room. Knowing that we had company coming we chose to watch the movie in our room with all of his new goodies.</div>
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We had special guests show up in the middle of the movie, so Kaleb, Gavin and Audrey got to see lots of the movie too!</div>
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Towards the end of the movie one of the Pixar animators that worked on the movie came in to visit and draw a personal picture for each of my children. He talked to them, hung out with them a bit and drew each of them a picture. It was pretty cool.</div>
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(Nat & Audrey with their personalized pictures)</div>
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After all this excitement we took the kids outside to play. They had a blast with bubbles, but all the pictures are on Bea's camera! And we played a game of Sorry, and in general hung out in the sunshine and let the kids be kids. It was nice to watch them laugh and giggle and be NORMAL. I am looking forward to many more normal minutes when we are back home. It has been hard for me seeing the serious side of life all the time and not getting to see the fun, giggles, laughing, goofing side of life... I need more balance in my world!</div>
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When we came back into the room there was a wonderful cake that the hospital provided for Nathaniel.</div>
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We were able to share cake with our friends and nurses before our friends left for the day. It was so great to see Audrey again. I am counting the seconds until we get to be a family together again. Audrey headed off with our friends to celebrate Gavin's birthday with him the next day, and Nathaniel and I settled in for another night.</div>
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Nathaniel's special day was filled with fun deliveries (presents from Gramie & Papa, Aunta, Bri and Jo, the hospital and his therapists), Balloons galore, friends (new & old) and lots of love. It isn't the birthday I would have chosen for him, but the people around us made it great for him anyways.</div>
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And he wasn't forgot by friends at home either! My Facebook page is filled with hundreds of "Happy Birthday" wishes for the boy, he got phone calls and special pictures, and I KNOW he was covered in prayer. Thank you to so many people for making sure he knew how loved he is on his special day!</div>
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Through it all, no matter how happy I was for him, I have been fighting horrible depression and gloom. I just don't know how I am going to get through this next two weeks, except for one step at a time resting in Him the whole time. I did rotate back into the family house today, and I am praying that a few hours in a regular bed will help me out, but I am also the only one here with Nathaniel right now, so I am not getting long blocks of sleep at a time. Today we are back to work, with therapy and healing and learning our new normal. I pray that my heart adjusts to this journey and I start feeling a little better, more myself.</div>
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Thank you to all who helped make Nathaniel's birthday special. Thank you to those who are still following our journey weeks in, and thank you most of all for your prayers.</div>
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Here is a cute video of Nathaniel playing with his birthday present from Bri & Jo... can't wait till he is home and shooting THEM with frogs! Hope it brings a smile to your face.</div>
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<a href="https://www.facebook.com/photo.php?v=10201438158776764&notif_t=like" target="_blank">VIDEO HERE</a></div>
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Anonymoushttp://www.blogger.com/profile/07703827195954238729noreply@blogger.com0tag:blogger.com,1999:blog-5686075478650713436.post-12341961979904367672013-06-27T16:19:00.000-07:002013-06-27T16:19:21.222-07:00Family Meeting and more<div align="center">
Our first family meeting was yesterday. A family meeting is when I get to sit down with the whole team treating Nathaniel and hear what they have to say. Being brand new to this facility I was a little apprehensive about what this would be like. But I prayed lots, and was as ready as I could be for it.</div>
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After the meeting I took Nathaniel outside for some sun therapy and I took some quiet time in prayer and listening to music before I could even share with close family and friends. I plugged in my iPod, laid in the grass and found a patch of sky that didn't have anything "city" in it.... and PRAYED through all I had just heard.</div>
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It's not that I heard so much BAD news, it's just that it is all so overwhelming at times. And there is no one to talk it through with, so I had to talk it through with God. </div>
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So... </div>
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The overseeing doctor had a few thoughts, mostly centered around the fact that she feels that Nathaniel wasn't getting proper services and was under conditioned coming into this situation. That was difficult to come into. I work HARD to get him services, we do TONS of therapy at home daily, and I try very hard to stay on top of his care and stuff. So it was defeating to hear that she doesn't feel like his chore strength is what it should be, that he is in the wrong braces, and that his home care plan is not adequate. And that is what we started the meeting with. Joy.</div>
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The medical doctor was next. Nathaniel has been battling kidney issues, a UTI, and a migraine all on top of the recovery from the spinal surgery. So we had a lot to discuss team wide there, but his medical doctor is AMAZING at talking to me, so I wasn't surprised by anything she said. If anything her talking centered me again after the first report.</div>
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Next up Speech Therapist. The speech part of this treatment was adding sort of as a "I have time and he could use it" thing. Nathaniel hasn't had speech services in years. But her report was another downer. She talked about his pragmatics, she talked about the lack of sequencing, she talked about the lack of social and conversational skills and she talked about the self centeredness of Nathaniel. All things I know, even some are things I have TRIED to get addressed, but haven't had much luck at. Then she started in on his current IEP and all the "necessary" things she saw missing there. Again, I went to the "wow, I thought I did this better" place. Sometimes I think these people need to stop and think about how they come across to families that are working so hard.</div>
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Next up OT (Occupational Therapy). Now Nathaniel gets OT at home once a month, so I am pretty up to date on what is "normal" there. Here they have been working with him on regaining self care skills, and how to do things he did before the surgery, but now has to do different ways, like pulling up his clothing or cathing or reaching things. Their report was pretty much in line with what I thought it should be and right what I have been seeing while we have been here. They also commented on how well mannered Nathaniel is with them. That made me laugh, as I always TRY to teach my children manners, but they tend to push my buttons so well!</div>
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Finally we got to the meat and bones of the report, PT (Physical Therapy) but the bummer is that Lucy, his fabulous therapist is on vacation this week, so we have had a lot of fill ins. This therapist was encouraging that she said he is gaining strength daily (which I can totally see) and we are all happier with the full AFOs and how he is walking in them. The discussion did come up about floor reactive AFOs and I am pretty set against those, I would far rather see him in a dynamic brace that is less cumbersome. This is a discussion I will continue to have before getting his final braces, but for now the new ones are working well. The PT report was very encouraging that they do feel like he is making great gains, and I feel like he is an amazing hard worker... so we agree on that!</div>
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Then FINALLY we got to talk about the important stuff. You know, the "when in the heck can we transition HOME" stuff. Now don't get me wrong, I KNOW this is where we are supposed to be, and this is God's plan for us right now, but DANG IT it is SO HARD to be here. So hard missing Audrey, so hard being so far from family and friends and so hard trying to EAT here, lol. I was both encouraged and discouraged with the pragmatics and time line laid out in front of me. Nathaniel will need PT 3 times per week at home, and will continue to need daily work. We will go home with a walker most likely, because as much as he is gaining, they don't expect full ambulation for many more weeks. And... </div>
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Drum Roll Please....</div>
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We have an expected discharge date of....</div>
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July 10th.</div>
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Yea, two more full weeks. </div>
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I think I can.....</div>
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I think I can.....</div>
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I think I can.....</div>
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Yea... it is discouraging in some ways. I am SO ready to be home NOW. But I am praying that it will help Nathaniel be that much more ready when we do go home. Please Lord, make it all worth it. And if you are praying for us, please pray I can keep my sanity here for 2 more weeks, that things with Audrey balance out, and that Nathaniel looses his "teenager" attitude that is pushing my buttons right now! </div>
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So that was yesterday....</div>
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Today I want to show you what a ROCK STAR this kid is!!</div>
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But technology is being EVIL to me!</div>
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The only place that my phone will upload the video to is Facebook, so I made it public and a going to post the link...Please, go watch it. </div>
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<a href="https://www.facebook.com/photo.php?v=10201425229213533&set=vb.1259037401&type=2&theater" target="_blank">WATCH VIDEO HERE</a> </div>
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This ROCK STAR couldn't stand post surgery. Last week he did well to stand with assistance. Today is WALKING OUTSIDE of the therapy gym for the first time post surgery! Our God is SO GREAT!!!! Just thought you would all like a little sample of how your prayers are blessing us!</div>
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If for some reason you can't watch it, here are a few stills for you... but they are nothing like the video!</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiPyqnQWtg7JOI0DtiR1AfMwfrsM0FzFmOB7M2j55MTHsNXRM9oOH6VCEUs6Yu3Xl27dKcAaPh51tB3fmu68T0RdG68wTmAPHi38X5a1Ckan7SNn-TmimRQ8g-AsbWlT_3hnFM1BIhzdk9U/s1600/PicMonkey+Collage.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="160" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiPyqnQWtg7JOI0DtiR1AfMwfrsM0FzFmOB7M2j55MTHsNXRM9oOH6VCEUs6Yu3Xl27dKcAaPh51tB3fmu68T0RdG68wTmAPHi38X5a1Ckan7SNn-TmimRQ8g-AsbWlT_3hnFM1BIhzdk9U/s320/PicMonkey+Collage.jpg" width="320" /></a></div>
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Is this kid amazing or what?</div>
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Yea, I think so too!</div>
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As always, thank you for taking this journey with us, we love you!</div>
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Anonymoushttp://www.blogger.com/profile/07703827195954238729noreply@blogger.com1tag:blogger.com,1999:blog-5686075478650713436.post-1526158440141990112013-06-26T10:11:00.002-07:002013-06-26T10:21:00.013-07:00Poor Poor Guy!<div class="separator" style="clear: both; text-align: center;">
The view from my window bed was gloomy and rainy all day.</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg-odaGHt8xTIt-IjqcTzcFSVUAi_UClfs5YGyWvhWCURbtSjBDddB253O4dQTBN7CaTVlbqF60kKgu3lPtthcAiL2u38SA8acTzs-WaxEVFXLn7yyMi6E_2-0jzRGt2xogRlyyuOpj7lWZ/s1600/IMG_20130625_111134.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg-odaGHt8xTIt-IjqcTzcFSVUAi_UClfs5YGyWvhWCURbtSjBDddB253O4dQTBN7CaTVlbqF60kKgu3lPtthcAiL2u38SA8acTzs-WaxEVFXLn7yyMi6E_2-0jzRGt2xogRlyyuOpj7lWZ/s320/IMG_20130625_111134.jpg" width="320" /></a></div>
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Nat struggled through the day. </div>
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I struggled through the day.</div>
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And the day..... did it's thing. </div>
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Nat worked hard at therapy. His new braces seem to be working well. He is a bit sore, but that is to be expected with such a huge bracing change. Other than that they seem to be working out well.</div>
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The evening took a dive for the worse though. Nathaniel had been complaining off and on throughout the day of a headache, he wasn't eating right (which could have caused the headache) and he was mopey. I was doing the assess and problem solve thing all afternoon and evening. But at 8, God finally had mercy on me and showed me the problem...</div>
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It seems the ultrasound wasn't completely correct... </div>
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Around 8 Nathaniel decided that it would great fun to pass another HUGE stone, throw up EVERYWHERE and pass out. Charming child. At least I wasn't WEARING any of it this time, so I guess I am getting a LITTLE quicker! Still not fun to deal with, and poor poor guy HURT like heck. </div>
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After all that was said and done momma needed to take a little walk and talk to friends for a while... a long while. When I came back the boy was sleeping and we had a somewhat restful evening.</div>
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They drew labs bright and early this morning to test his kidney function and see if everything is balanced... Praying for those results. I am also getting ready to go into our first family meeting in a few minutes. I am curious to see how this works, and REALLY curious to see what they think our new adjusted timeline is. Pray with me?</div>
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We will update again soon!</div>
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<br />Anonymoushttp://www.blogger.com/profile/07703827195954238729noreply@blogger.com0tag:blogger.com,1999:blog-5686075478650713436.post-64174086404721752542013-06-25T10:29:00.000-07:002013-06-25T10:29:40.908-07:00Catch up updating<div align="center">
Well.....</div>
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The ride continues around here!<br />
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Today marks the three week mark of us being here. Three really super long weeks of lots of highs and lows, lots of pain and hard work, and even a fair amount of tears. </div>
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Nathaniel continues to work hard in his therapy, and although it is a very slow process he is doing great. I have my first "Family Meeting" on Wednesday where I get to sit down with all of the doctors and therapist at once and hear what they think about how he is doing, what direction we are heading and their adjusted time line. I am in part looking forward to it and in part dreading it. And I am flying solo in it, but I am getting way too used to this flying solo thing. Not that I am saying I am getting any better at flying solo, but I am at least getting used to it! But I am so past ready for God to bring a life partner to make these stormy journeys with me!</div>
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Saturday day was this girls birthday.....</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj5CgGMB357ls3A4ve5QE1Qv8IL9Pn7wQ8JrL9jzB2RCaco-ggRDlTqlMZyyRaKqgc6wSKK7Fk3yP5aZd3VU1cS0VA-uO4VvErpWifUCul1Au6qhK9EdGkD5uhZLbMGKiHK7gKL7yZNqXeN/s1600/IMG_5495.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="205" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj5CgGMB357ls3A4ve5QE1Qv8IL9Pn7wQ8JrL9jzB2RCaco-ggRDlTqlMZyyRaKqgc6wSKK7Fk3yP5aZd3VU1cS0VA-uO4VvErpWifUCul1Au6qhK9EdGkD5uhZLbMGKiHK7gKL7yZNqXeN/s320/IMG_5495.JPG" width="320" /></a></div>
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Well... </div>
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that was her....</div>
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about 18.5 years ago! </div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhhD7Vb2Ldhsnw0MHxkLLEbJ8EgVEHYSknQQpt4aOKAmO11u4PSGte_88TCgDJ9LouPk4ea-YgE8t0BcvMtnzNYFcDCTljYmdEJ4xxPQX9ntZOj3tuPOYXW9dUQ40zJR1VJlmU2t8TiaGqi/s1600/Brianna.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhhD7Vb2Ldhsnw0MHxkLLEbJ8EgVEHYSknQQpt4aOKAmO11u4PSGte_88TCgDJ9LouPk4ea-YgE8t0BcvMtnzNYFcDCTljYmdEJ4xxPQX9ntZOj3tuPOYXW9dUQ40zJR1VJlmU2t8TiaGqi/s320/Brianna.jpg" width="283" /></a></div>
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She looks a bit more like this now..</div>
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I was bummed to miss her special day... I know she understands where I am and why I am here, but I am still used to spoiling them on their day! This girl is going to have a "do over" birthday when I get home!</div>
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The harder thing to miss on Saturday AND Sunday was Audrey's dance show. I have never missed one of her shows. This is a first for me as a mom, and when Mark (her father) texted to say he had been there, I REALLY felt like a horrible mother. But what could I do? There is only one of me... and one is probably enough for this world! Faline, Brianna and Josh kept me supplied with pictures and updates, and Gramie texted me often to tell me how great Audrey was doing, but I still felt awful!</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi61m6bbjFKDW5B1eDU2V-SWfy7exRNBv0uNH8KUQtvPA-iSdfsH9urydDWBJDdpvosoZ2j9cfo-H64oEONL77QS8z_EXiMaVITJm824ogCaXg3RAi5l0-svT0P5V_DZjeSGOz5XGabzAb4/s1600/PicMonkey+Collage.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="115" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi61m6bbjFKDW5B1eDU2V-SWfy7exRNBv0uNH8KUQtvPA-iSdfsH9urydDWBJDdpvosoZ2j9cfo-H64oEONL77QS8z_EXiMaVITJm824ogCaXg3RAi5l0-svT0P5V_DZjeSGOz5XGabzAb4/s320/PicMonkey+Collage.jpg" width="320" /></a></div>
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Thankfully I have pictures...</div>
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And I ordered a DVD, so when I get home we can all watch it together. </div>
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But it still feels like a mommy fail.</div>
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Thankfully the Lord gave me something else to focus on for a bit on Saturday.</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhgud4-AEn098U3VNNHt6hfSWODunQ8I-t19YV73plM7FfIPeDpwq1vp5D9bPg-ALFsbpzwMHl5_qV5qt-a8-CLTsQQ-fIAsdf4LtQEG1k0iLdGE6TauDcmRWI3IufPmVwtY6d_zlHu_Omy/s1600/IMG_20130622_150819.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhgud4-AEn098U3VNNHt6hfSWODunQ8I-t19YV73plM7FfIPeDpwq1vp5D9bPg-ALFsbpzwMHl5_qV5qt-a8-CLTsQQ-fIAsdf4LtQEG1k0iLdGE6TauDcmRWI3IufPmVwtY6d_zlHu_Omy/s320/IMG_20130622_150819.jpg" width="320" /></a></div>
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Our DEAR SWEET friends the Jansen's came up to hang with us on Saturday. What a TOTAL TREAT for the second week in a row! It is SO GOOD to see faces from home, to get hugs and to simply hang out. Even when kids are being KIDS, and time is limited, and we are tired... it is still SUCH A BLESSING to see friends!</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_-K5P0lW7ub9qEy8bNEYfVw2QEZNvwwj_aXT6kLk2HW_vgjytKm5te1hIvNsS6-BHC8k1OkElpj-zMudJLDmLYPrt6edINz3myD1MrSHltvtFzzo9TqcfAmw0VJa458tMi9uvnDzUvbiG/s1600/IMG_20130622_160328.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_-K5P0lW7ub9qEy8bNEYfVw2QEZNvwwj_aXT6kLk2HW_vgjytKm5te1hIvNsS6-BHC8k1OkElpj-zMudJLDmLYPrt6edINz3myD1MrSHltvtFzzo9TqcfAmw0VJa458tMi9uvnDzUvbiG/s320/IMG_20130622_160328.jpg" width="320" /></a></div>
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You see those SMILES????</div>
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Those smiles are PRECIOUS and a gift and we are so blessed that Bea, and Kaleb and Gavin brought them to us!</div>
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After Bea and the kids left on Saturday Nathaniel began having more bladder issues. Things really haven't balanced out for him since the 7 days of Foley. But Saturday night Nathaniel had passed 5 stones. Poor kid, that has just GOT TO hurt. He is still having issues, so we FINALLY got an ultrasound tonight. Hopefully we will have results tomorrow. With everything else that is going on, I really hope either he has passed all the stones, or that the remaining ones are small enough to do a flush and get out. Really? Not ready to head back under anesthesia yet!</div>
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Sunday was a very low key day. Nathaniel didn't feel good, I was struggling emotionally and the Lord was walking me through another battle of the mind too. To say we were both BLAH would be an understatement. We did journey outside a few times to Nathaniel's favorite tunnel for a little fresher air and some sunshine.</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhSV1rEND-P4C5t5n6F7dykSD5skOdG7kLvL7QYsbxzK9GdNeSLqyhFwFNDaLvNtjXCWL068XZO8LbwUxCRfjsRFrZTxvPt6Trebm73znxdiy9nl-hkZc1Gt_MCEREsHYOtbiZoGlzq8A4t/s1600/IMG_20130621_173007.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhSV1rEND-P4C5t5n6F7dykSD5skOdG7kLvL7QYsbxzK9GdNeSLqyhFwFNDaLvNtjXCWL068XZO8LbwUxCRfjsRFrZTxvPt6Trebm73znxdiy9nl-hkZc1Gt_MCEREsHYOtbiZoGlzq8A4t/s320/IMG_20130621_173007.jpg" width="320" /></a></div>
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He even talked me into getting in his tunnel with him... ONCE! </div>
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Nathaniel's favorite hangout when he's feeling down.</div>
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The other fun thing we did on Sunday was figure out how to wash Nathaniel's hair for him! He hadn't been able to really bathe since before his surgery, and his hair was driving him NUTS!!! SO the doctor told me as long as I didn't get his back dressing wet, I could wash his hair!! We got creative with his bed, and in the end he was MUCH happier!</div>
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Sunday evening Audrey headed over to our dear friends the Dicus's home. I guess I should have warned them how much Audrey misses having a dad figure in her life.... seems she and Chris got a little hyper together! It was fun to get silly playful pictures from MeLisa of Chris and Audrey having giggles and fun.</div>
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Monday morning brought more highs and lows.</div>
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Nathaniel was still in pain from his back AND his bladder tract. But at least we had an ultrasound ordered for later in the day. And the high....</div>
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Was that our WONDERFUL friends the Dicus Family came up to see us..... It was lots of fun to hang out with Luke, Anna Grace and MeLisa for a few hours.</div>
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AND they brought MY PRINCESS with them!!! I can't explain the hurt in my heart being so far away from her day after day. This momma doesn't do long distance well. It was so good to have her here with us for a few hours. I feel like I am stealing time every time I get her for a bit. But it helps my heart so much too. MeLisa can't possibly know how very much it means to me that they all took the time to come see us AND bring Audrey in the midst of so much in their own busy lives. Such dear sweet friends we have. They make this journey more bearable.</div>
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The kids laughed, and made a video, and played sock football and just were KIDS for a bit. MeLisa and I got to talk and be "normal" for a while and I got LOTS of hugs. The day was truly blessed.</div>
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Nathaniel had to do his normal therapy in the midst of all of the visiting. And he had new braces made yesterday too!</div>
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The doctors and therapist are not liking what his SMOs are doing for him right now, and they don't fit right post surgery either, they are giving him pressure sores. So the team said "new braces" and my heart flipped. Anyone who walks the SB journey knows that changes in braces aren't usually an easy thing. And Nat has been in SMOs for a pretty long time. So I was expecting the long drawn out discussion that we have been having at home about what is "right" for him. But not at all. They said "AFO is the next thing to try"... I was questioning the carbon floor reactive as we had been looking into those at home. But they said they just make up the AFOs here and we try them and that tells us where to go next. I was floored. Usually there is such a hassle with insurance, and casting and fitting and blah blah blah.... but nope. They casted him.....</div>
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And less than an hour later he had new kicks on! Amazing.</div>
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So these are temporary kicks, to try them out and see if this is the correct brace for Nathaniel. Can I tell you how IN LOVE I am with this theory??? So in love. Excited to see what will happen with this!</div>
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Also, right before dinner Nathaniel finally got his ultrasound.... </div>
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and drum roll please....</div>
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the doctor JUST came in as I am writing this....</div>
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and there are NO MORE STONES!</div>
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Thank you Lord.</div>
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I am not sure I could have dealt with more anesthesia this soon. </div>
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We ended Monday with a sweet picture from MeLisa of Audrey being a KID and having a BLAST. Makes my heart happier, even if I can't be there with her.</div>
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At least she is getting some summer and some fun!</div>
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Today is rainy and gloomy... and so is my mood. </div>
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But I have my ipod....</div>
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and my bible......</div>
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and my friends....</div>
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and I am praying this gloom away! </div>
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Prayer points for today:</div>
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*For strength as we continue this long long journey. That our hearts not grow weary.</div>
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*For someway to make Friday special for Nathaniel</div>
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*For continued healing and strength and progress for Nathaniel</div>
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*For a personal journey that the Lord has me on, that His path is the path I stay on, and that I see God's leading in each step of the journey.</div>
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As always, we love each of you taking this journey with us SO MUCH. Thank you so much for praying with us, loving on us, and encouraging us so much. I so could not do this without so many of you behind us keeping us lifted up. Seriously. Couldn't do it. You all are my constant reminder of God's strength and compassion right now.</div>
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Anonymoushttp://www.blogger.com/profile/07703827195954238729noreply@blogger.com0tag:blogger.com,1999:blog-5686075478650713436.post-5895863242610359882013-06-21T10:45:00.000-07:002013-06-21T10:45:58.929-07:00Just Doing It<div align="center">
I have again been accused of being quiet or not present....</div>
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And the truth of it is I know it, </div>
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But don't have the energy to do much about it.</div>
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I think we are in the "Just doing it" phase right now.</div>
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Yesterday was the 16th day in a row in the hospital for us, </div>
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and I think the sort of hospital depression has set in for both Nat and I.</div>
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On Wednesday we were both so tired that we curled up and took naps in my "window bed" together when he wasn't in therapy. We also went outside and played Uno in the courtyard to soak in some sunshine. Nathaniel continues to work SUPER hard in his therapy sessions and is an inspiring little guy. The world could take a few lessons from him about hard work, perseverance and great attitude in the midst of storms.</div>
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I mean, look at that schedule... this kid is working HARD all the time. But he is doing GREAT too! He can walk about 10 foot in his walker unassisted now. Not too shabby for 15 days out of major spinal surgery.</div>
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Nathaniel has definitely hit a round of the hospital blues, but in God's perfect way his worst bout was minutes before his music therapist came in! He had a great session with Matt and worked through lots of his feelings. He was much more stable after that.</div>
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There was also a special event at the hospital yesterday. I had a migraine and REALLY didn't want to go, but I knew Nathaniel would dig it, so I sucked it up, took lots of medicine and we ventured out....</div>
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And Nathaniel was THRILLED!</div>
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The hospital had a Meet & Greet with the 501st Legion and Rebel Legion, a group that spreads the magic of Star Wars costuming worldwide. They were very cool, and so kind to all the kids. And WAY COOL about photo ops with the people too!</div>
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Nathaniel's spirits were visually better after a little bit in the company of some of his favorite Star Wars characters!</div>
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Definitely a "mommy win" moment!</div>
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My heart is a little torn heading into this weekend. I know it is SO IMPORTANT to be here and for Nathaniel to be getting these fabulous services, but I am still broken hearted over some of the stuff we are missing at home. We have already missed BIG things like Damen's graduation, Josie's dance recital and Traci's celebration of life. And we miss everyday things like serving the Lord with my Open Arm friends, going to church at home, hugging my friends, play dates, my standard breakfast dates and Friday night BBQ & pool tradition. This weekend is another one of those events that I will miss, and this one pierces my heart again. Audrey's dance recital is this weekend... and it will be the first one I have ever missed of hers. Sometimes it is REALLY hard to be a single mom and balance it all, and this is one of those times I HATE being a single mom. But the Lord has a plan, so I will go with it. I will trust Josh and Faline and my mom to make this recital special for Audrey, and I will try not to cry thinking of her, and the FABULOUS RAD show I will be missing. I am so thankful that there are other people in Audrey's life that will make this special for her, and I will sit back and let her be blessed by them this time.</div>
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BUT I am TOTALLY excited that our dear friends the Jansen's are coming to see us on Saturday AND our friends the Dicus's are coming up on Monday AND they are bringing Audrey with them!!! So hopefully, spirits will be up after the next few days. It is SO nice to see friends and family. I know it is a HUGE trip to make to see us, so we are so blessed by those that can come. </div>
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As always, we love you and thank you for joining us in this journey in prayer, in thought and in encouragement! </div>
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Gretchenhttp://www.blogger.com/profile/18149076121047338972noreply@blogger.com0tag:blogger.com,1999:blog-5686075478650713436.post-53194577086547666062013-06-19T09:01:00.000-07:002013-06-19T09:01:57.392-07:00And the ride continues...<div align="center">
Every time I think I have got this journey figured out and the ride is settling out we hit another bump!</div>
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Yesterday I told you that we had our routine down, and that I was feeling better.</div>
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Well, this morning that routine was rocked, and I sure didn't handle it with much grace.</div>
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You see, for the last 6 days at the hospital we have been "living" in this teeny tiny quarters. Quarters where Nat can't get out of bed at night unless I fold my bed up. Quarters with a possessed sink. Quarters where the wheelchair and the walker can't both be set up at the same time. Quarters that challenged me in so many ways.</div>
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But, as I was reminded this morning, we were in the Rehab unit that I prayed for Nathaniel to be in, so who cared if we were in the smallest room there? And on this journey, our whole family is making many sacrifices, so who cares how much it challenged me? And the truth of the matter was that I still had the fabulous family house to go back to. That was my break and sanity. </div>
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Well, the thing with the family house is that there are a limited number of rooms, and a great many people with needs. The "rule" is that you can only stay a week before you get put on the rotate out list, and we have been there since June 4th... a little longer than a week, lol. So far I have been very lucky that the need hasn't been huge, and therefore I haven't been rotated out, but that luck ran out this morning. And I will admit it, I cried. I looked around me and wondered how in the world I was going to make it work at the hospital so far from home with so much stuff. And I really did have a pitty party for a little while. I am a SMALL town girl, and this town really terrifies me, so having the comfort of the CLOSE place to escape, and the security of my car in a locked parking area and security escorts back and forth to the house, really made me more comfortable. But the truth? This journey isn't about my comfort, it is about getting Nathaniel healthy!</div>
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So, throughout the day, as Nat worked his booty off in therapy and at all of his work I tried to find that happy place, that place where I was grateful for the fabulous therapy he is getting here, that place where I KNOW God will take us through this journey the way He wants us to go, that place where I can walk with His grace no matter what. And by mid afternoon I found it again. I was ok. I was trusting Him again, and knowing no matter what challenge we faced we could do it. And pretty much as soon I found my way back into his peace and walked with grace, that is when He blessed us. You see, He really did have a bigger, better plan and in His perfect timing He revealed it to me.</div>
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First a nurse came in to let me know that our roommate was leaving today. We knew he was having surgery, but we didn't know that he wouldn't be coming back to this unit afterwards. She told me that we were next up for a better space, and did we want their space. Of course, I immediately agreed. While the room is still RIGHT next to the nurses stations (and therefore incredibly LOUD 24/7) the space was double what we had. I was happy, it would work out fine, we had dealt with the noise for almost a week, we would just continue to deal with it. So I started packing up to "move". I was kind of laughing at myself for being so insistent that EVERYTHING had to go on the bed so that we could push the bed like 8 feet. I mean REALLY? But for some reason that is what my head insisted I did!</div>
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Next, Matt the Music Therapist came by. We have been trying to coordinate music therapy for Nathaniel for like 10 days now! But Nathaniel's schedule and Matt's just never seemed to line up. Well today Matt came by before he put anyone else in just to make SURE he had time slots for Nathaniel this week. How sweet is that? So for Nathaniel's 6th and last therapy of the day, he and Matt had their first session together this afternoon! Nathaniel was so happy! Totally sweet.</div>
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After music therapy the nurse came in to "move" us. What went down next is kind of funny, and totally God.</div>
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Nurse: You packed ALL of your stuff?!?!?!</div>
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Me: *totally embarrassed* Yes... I just felt like I HAD to for some reason.</div>
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long pause</div>
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Nurse: You wanted a quieter room, right?</div>
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Me: Well yes, we wanted a quieter room, and one with more space so Nathaniel can use his equipment safely. We will be happy with half of that though, the more space will help. </div>
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Nurse: But REALLY you want bigger and quieter, right?</div>
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Me: Well.....in a perfect world, yes.</div>
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Nurse: I will be right back.</div>
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A few minutes later he comes scurrying back in "hurry, hurry, we have to hurry"</div>
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And he rolls Nathaniel's bed out of the room....</div>
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and down the hall.....</div>
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and Into another room WAYYYYY far away from the nurses station....</div>
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and to a window room!!!!!</div>
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God is SO GREAT!!!</div>
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Welcome to our new room...</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgCNsMg-aIuqKQZs1m18P2Ii5LNKHD8fNJ_hBgyk80MiLmcpMIw_t11Jk1rrDUE4DxHqThZa9hARCMbYZMR7ytG0kR00MZ3KCbMAGY80Lx0os9nOwrDYCWHfrYegn1sTsu3CYR7rJeSKpB3/s1600/room+1.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgCNsMg-aIuqKQZs1m18P2Ii5LNKHD8fNJ_hBgyk80MiLmcpMIw_t11Jk1rrDUE4DxHqThZa9hARCMbYZMR7ytG0kR00MZ3KCbMAGY80Lx0os9nOwrDYCWHfrYegn1sTsu3CYR7rJeSKpB3/s320/room+1.jpg" width="320" /></a></div>
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The window rooms have BEDS for the mommy!! </div>
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And drawers for stuff to go in!</div>
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And SPACE to use the equipment!!</div>
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Nat can even sit IN his chair in the room!!! So much better for him than being in bed so much!</div>
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And his BED, and CHAIR AND WALKER all fit, WITH room to use them!!!</div>
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God is SO GOOD.</div>
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Silly me for even doubting him for one second!</div>
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It turns out they were going to put us in this room, but then the first nurse told me the wrong thing and instead of making her look bad they just decided to do what she said. But the second nurse has had us before, he knew how hard of a time Nat has with the noise, and he decided to "fix" the whole problem. But the thing was, there was another patient on their way up from surgery... he needed to move us, establish us in the better room AND get back and clean the old room BEFORE the other patient made it up from surgery. Obviously it would have been easier to NOT do this fabulous thing for us, but he did it anyways. So blessed.</div>
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Lesson learned today....</div>
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God is Good ALWAYS.</div>
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One should not doubt His goodness.</div>
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Trust in Him, walk with Him and KNOW that His plan is better than ANYTHING our minds can come up with.</div>
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And PRAISE Him in all things!</div>
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So, this girl, she was humbled today, and she is SO thankful her Father has a bigger plan. We are ready to keep walking on this path.</div>
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As always, thank you for walking this journey with us, thank you for praying for us, and THANK YOU for loving on us. We miss home, and family (bio and church) SO MUCH, but you are all so encouraging and such a blessing to us. God was so good in giving each of you to us, please know we treasure you and your places in our life.</div>
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Anonymoushttp://www.blogger.com/profile/07703827195954238729noreply@blogger.com1tag:blogger.com,1999:blog-5686075478650713436.post-539762374276816112013-06-17T22:00:00.000-07:002013-06-18T09:30:12.545-07:00Day 13 Update<div align="center">
I have been scolded....</div>
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Many times.....</div>
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Guess I was too quiet yesterday.</div>
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Sorry.</div>
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Nat got up EARLY.</div>
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Like REALLY FREAKING early...</div>
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So I was tired.</div>
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Early morning wake up from the boy means I made him do therapy while he waited for therapy! You see a game? I see an exercise in linear processing! We played tons of games of connect four over and over until he went to therapy.</div>
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Here at Children's Oakland they have this thing called "primary nursing". This great nurse Debbie signed up to be Nathaniel's primary, which is totally COOL because I really like her! So, yesterday Debbie noticed that I was exhausted and she was so sweet. She arranged for a volunteer to hang out with Nathaniel so I could head back to the family house for a block of time. </div>
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I got a key to the gym at the family house the other day, so I was totally excited to use the gym, do some laundry, take a shower and sit out in the sunshine and listen to tunes. I didn't feel rushed or hurried, I just got to relax some. That was a good thing for me.</div>
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Nathaniel worked hard at therapy yesterday. He is making small gains each day. He stood for 2 minutes without holding onto the walker yesterday! </div>
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Other than it was a kinda ho hum day.</div>
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Not bad.</div>
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Not great.</div>
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Just was.</div>
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We all have those, right?</div>
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We are STILL in the teeny tiny room, still praying for a window room that has a little more room in it!</div>
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We are still having issues with his bowels, and praying for some solution there.</div>
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And we are always praying for recovery for the boy!</div>
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Love you all! </div>
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Anonymoushttp://www.blogger.com/profile/07703827195954238729noreply@blogger.com0tag:blogger.com,1999:blog-5686075478650713436.post-32020367525140713772013-06-16T22:00:00.000-07:002013-06-17T08:32:45.091-07:00Day 12 Update<div align="center">
It is Sunday.....</div>
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A day of rest.....</div>
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And that is what we did!!!</div>
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It does this momma's heart god to see her babies together. LOVE those kids. But bright and early Gramie and Audrey had to catch the train back home, cursed work that Gramie has to do. </div>
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As much as we LOVE having them come see us, goodbyes never get easier!! Hence the momma tears before 8 am! This journey is a sacrifice in so many ways for our family, but we are giving it to God for His glory!</div>
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After Audrey and Gramie got on their way Nathaniel and I just chilled out. Nathaniel is currently battling a UTI and he is still having issues regulating his bowels. So he was sleepy and low key much of the day. Thank goodness for the laptop and Nexsus and iPods, lol. We spend many hours plugged in. We did take a break and play a few board games and do an art project.</div>
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One of the cool things about being in a Children's Hospital is that they have great things for the kids to do! One day last week when Nat was still feeling pretty crummy the school volunteer brought him this ceramic turtle to paint, but he didn't feel up to it. I held onto it because it was such a darn cute project, and yesterday we painted it together. So cute and so fun. We had a blast talking and working together on this project. And that is one of the blessings of this journey. I have always been very close to my children, but I am having all of this one on one time to bond with Nathaniel as he is entering his puberty years, I love how he will talk about anything with me, and we are just solidifying that bond right before he heads into a stormy time in most kids life!</div>
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By the evening Nathaniel was feeling somewhat better, and since he hadn't had therapy all day (no therapy on Sunday) I took him out for some sunshine and laps...</div>
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He wasn't exactly thrilled with me, but hey, being a good mom doesn't always mean you are the most popular person around!</div>
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I needed the low key day in many ways, as my heart just needed some time to rest. I adore seeing my family, but it takes a minute (or a day) to readjust to being alone. And we had LOTS of friends and visitors this weekend, so it took a bit longer even. But that is ok, I wouldn't trade our visits away for anything! Also, yesterday before the surgery was set, Nathaniel was signed up to do a special activity that he LOVES to do, so I was a bit sad that others were having fun diving, but Nat was here. We missed Marv and the Day Of Discovery program, but know there will be other opportunities for us in the future.</div>
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Our current prayer requests are kinda the same ole....</div>
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*UTI Healed</div>
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*Bowels back to normal</div>
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*A NEW BIGGER ROOM!!</div>
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*Peace on the journey</div>
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*Blessings and grace on Audrey at home.</div>
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As always, thank you for joining us in this journey and standing with us. </div>
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We love you!</div>
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Anonymoushttp://www.blogger.com/profile/07703827195954238729noreply@blogger.com0tag:blogger.com,1999:blog-5686075478650713436.post-30145235525490319592013-06-16T13:29:00.002-07:002013-06-16T13:29:56.424-07:00Father's Day with a Twist<div align="center">
Did you know it's Father's Day?</div>
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If you are a Facebook junkie, like myself, then there is no way you can miss the fact. 9 out of every 10 posts are about Father's Day, and how fabulous of a father or husband my friends have. And I am glad for them... I think. I am glad there are those that have great father's that they get along with. I am glad there are those that have wonderful husbands that make great fathers. I am glad that there are children who have wonderful fathers to look up to.</div>
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Unfortunately I am not really one of those people. I have a father, who did his best, and I am thankful for the sacrifices he made for us. My children have a father that is worth little more than the sperm he donated. He has done, at best, equal parts good and horrible in our lives. We do have a Heavenly Father that loves us beyond comprehension, but to me EVERY day is Father's Day for that father. On the home front, I am mom and dad and everything that comes in between, so this day, once a year, is kind of like salt in the wound to me. I pray daily for a role model for my children, for Godly man to walk through life with, for the fulfillment of God's promises, but for now, it' just us!</div>
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But this year my heart is totally burdened on this Father's Day.</div>
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I want to take a second to share that burden with you, and ask you to commit to pray over it with me.</div>
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In my time here are Children's Hospital Oakland my eyes have been truly opened to a horrible problem in our society. A problem I knew of before, but I never felt at a heart level before. A problem I want to shine a light on, call out of the darkness, and ask my brothers and sisters in the Lord to pray with me over. I can't explain to you how in the midst of our own journey through the storm my heart has been burdened for another group of children, but it totally is.</div>
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We are here at Children's Oakland because of a health issue that Nathaniel has. It is a trial and a storm for us, but it is something that NO ONE caused, it just is. And as much as it hurts my heart that our whole family has to go through this, it is just one of those journey's in life. But some people are here on journeys BECAUSE OF others. This week God has been introducing me to situations that break my heart. I have time and time again run into children here BECAUSE of their fathers. And that is a concept that I can't wrap my mind around. There are two stories I want to share with you.</div>
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*please excuse my horrible pronouns... I want to protect these kids as much as possible.. so they are its... but they are SO NOT its in real life. They are children with stories, lives and passions.*</div>
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One family we have had contact with over and over again is here because of a horrible accident. An accident where a 10 year old child was playing on the roof of a building while under the supervision of its father. The father KNEW the child was playing up there, and was inside watching TV while the child played. The child fell off of the roof, hit their head hard enough to give itself a traumatic brain injury and laid there for Lord knows how long before the father found the child. That child was taken to medical care (there is a question of how quickly that transport happened, the stories differ between the parties involved) where the child actually died in the ER. The medical team was able to resuscitate the child after 10 minutes! Oh my. Now the child has had multiple brain surgeries and is learning how to live all over again. A 10 year old child. A child who was running, and playing, and laughing and LIVING just before the accident. An accident which could have possibly been prevented by firmer boundaries, an accident who's severity could have possibly been less with proper supervision and attention to timely medical attention. Now I see this sweet little one, and the rest of the family trying to come to terms with the consequences of this accident. And it is HARD. And this child will FOREVER be changed by this situation. My heart goes out to all of them. </div>
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That story number one has a happy ending compared to another story God has shown me.</div>
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While at the family house the other day I came across a man crying over his bible. An older man. With tears of agony. Being a believing and compassionate sister myself, I asked him if there was anything I could do for him. He told me he had been asking God for someone to pour his story out to, that no one wanted to hear it. So I turned my listening ears on, and asked God to give me strength. Little did I know how much strength it would take....</div>
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This man was a grandpa, and he was here supporting his daughter and her child. It seems that his daughter had this child with a not so nice man. The child is young, very young (like less than a year). It seems that the mother had second thoughts after she got pregnant and didn't want the child's father involved in the child's life. As happens so often, they ended up in court. The court didn't see the same danger that the mother did and granted the parents joint custody. On the FIRST unsupervised visit the child's father had with the child, the father severely beat the child. As this child's grandpa poured out his story all I could do was pray for strength to keep listening as tears poured down my face and my heart broke. </div>
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The grandpa showed me pictures of a PURE, INNOCENT ANGEL. The child was so beautiful before this evilness happened. Then the grandpa asked my permission to show me pictures of the child now. I stared this interaction asking what HE needed, so how could I at this point say no, if what he needed was to share the whole story? So I gulped big, prayed hard and looked at some ABSOLUTELY evil images. My heart shattered. This man I had JUST met and I sobbed together for the hand of evil in this world. And we just laid it at the throne of Jesus. What else could we do? Grandpa shared with me that the medical team had just broken the heart shattering news that this angel would be dying very soon. There is just no more human physicians can do for this child, the injuries are too sever and the damage too far gone. So this grandpa and his daughter are now walking the road of saying an earthly goodbye to their angel, all because of evilness in this world. Really, what could be worse? I just can't comprehend it. </div>
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After this interaction I asked God what I could do with this information. Yes, being a listener and praying for this family is important, but I really sensed that God wanted me to do MORE with these stories, and all of the other stories he has shown me while I am here. And honestly, I still don't know the full answer. But I do know that I can share my heart break and beg you to pray with me.</div>
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Pray for the children of OUR world, OUR country, OUR states, OUR counties and even OUR TOWNS who don't have TRUE parents (because it really can go both ways).</div>
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Pray for mothers and fathers everywhere to step up and recognize the GIFTS they were given in their children.</div>
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Pray for fathers to be men of God and show love, compassion and understanding to their children. That they may stand in the gap between evil and their children.</div>
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Pray for mothers to be women of God, to show love, compassion and understanding to their children. That they may always protect their children from the evil of the world.</div>
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Pray for protectors of children everywhere to have their eyes open to the evil around them. That they might realize the evil before it damages children. That they may be able to bridge the gap and PROTECT children.</div>
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Pray for the families devastated over the touch of evilness on their children.</div>
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Pray for our courts to better discern what is safe for children.</div>
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And pray PROTECTION of children from the evil one.</div>
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On this day when we celebrate fathers, lets take a moment to pray for those without real fathers too.</div>
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This is the burden of my heart today.</div>
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This is where my prayers will be today, and for many to come.</div>
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Won't you join me?</div>
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Anonymoushttp://www.blogger.com/profile/07703827195954238729noreply@blogger.com0tag:blogger.com,1999:blog-5686075478650713436.post-61785173031426998732013-06-15T22:06:00.000-07:002013-06-15T22:06:16.102-07:00Amazing Day!!<div align="center">
Sometimes God just pours out the blessings on you, and today was one of THOSE days for us!</div>
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My mom and Audrey got here late last night, and my momma is FABULOUS so I got to sleep at the family house with Audrey last night while mom stayed with Nathaniel at the hospital. I slept so great in a REAL bed, not having to worry about Nathaniel... so great in fact that I slept right through the alarm this morning! 8 whole hours of sleep, I don't think I have done that in like 3 weeks! Plus I can't tell you how great it was to have BOTH of my kids with me all day today. What a blessing!</div>
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When Audrey and I finally got to the hospital, we all took Nathaniel downstairs and had breakfast together in the cafeteria, where we received a great surprise!</div>
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The other day when I had my mini break down one of the guys I called was my good buddy Terry from church at home. Terry also happens to be involved with a group called Black Sheep, and he called on the Oakland Chapter of the Black Sheep to shower some love on us!</div>
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The Black Sheep is a Christian Harley Davidson Group, and my buddy Terry is the chaplain for the group in our area. One of the GREAT things about belonging to the family of Christ is that we are ALL FAMILY, so when Terry called the Oakland group and told them about Nathaniel and I being up here, a group of them got together and came over to visit us!</div>
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They found us in the cafeteria (which was probably a good thing, I doubt that half of them would have fit in our room!) where they hung out and talked to us, prayed with us, invited me to church with them, and gave me contact info so I could call them if or when we need anything. I LOVE true brothers and sisters in Christ, they make you feel Jesus's love even if it is the first time you have laid eyes on them. This group was great!</div>
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They brought Nathaniel some cool gift like another new blanket, a new testament and we all got their coins. So sweet!</div>
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And when they got ready to leave we went downstairs so the kids could see their bikes. Nat couldn't go out of the hospital, but Audrey could, so she got to sit up on one of the bikes! She was THRILLED, as she has always loved motorcycles, and this one was even PURPLE. Happy girl!!</div>
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After the visit from the Black Sheep Nathaniel had his therapy sessions for today. When he came back from therapy we had another surprise! Our dear friends Bea, Kaleb and Gavin came to see us! We took the kids down stairs for lunch, then out to a playground that patients and families are allowed to use.</div>
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It was so great to see the kids playing with some of their best friends and it was SO GREAT to have one of my best friends here with me for the afternoon. What a blessing!</div>
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Audrey and Gavin are great playmates and always have fun together.</div>
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And today was the first time that Nathaniel has been outside since June 4th! It was so good to see him outside and chilling. He even got out of his chair a bit and sat on the toys. Love my rock star boy!</div>
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Where the playground is seems like it might have originally been the front of the building, the architecture there was so beautiful and Bea and I were really enjoying it!</div>
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After hanging out with our dear friends for a few hours they had to hit the road and go back south. Then it was time for a little family time. Gramie, Audrey, Nathaniel and I played some board games and had lots of giggles. Gramie didn't fair so well at Sorry (finally I wasn't the only one loosing!) but we all did pretty well at Uno! Lots of fun together.</div>
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At the end of games Nathaniel was EXHAUSTED, we had him out playing almost all day. So we tucked him and Gramie in at the hospital and Audrey and I headed back to the family house. Gramie and Audrey are leaving on an early train tomorrow morning, so Audrey and I packed them up and cleaned our room up. </div>
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Yes, I even did chores today! A load of laundry and cleaned my room. Aren't I a good girl? LOL</div>
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Now Audrey and I are curled up cuddling as she heads back home tomorrow. </div>
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I feel like such a blessed girl today! </div>
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We do have one prayer request tonight.....</div>
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Nathaniel has had a hard time regulating his bowels back out since the surgery. At first he was too stopped up, and now he has the opposite problem. It is getting on all of our nerves and he is really frustrated by the whole issue, so could you please join me in praying that he balances back out?? The bible teaches us that God wants us to involve him in EVERY aspect of our lives... so here is a great way to practice the EVERY part! </div>
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We love you so much and are so blessed that you are on this journey with us!</div>
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Anonymoushttp://www.blogger.com/profile/07703827195954238729noreply@blogger.com0tag:blogger.com,1999:blog-5686075478650713436.post-41105364458822844192013-06-14T23:32:00.001-07:002013-06-14T23:37:12.237-07:00Finding a Rhythm<div style="text-align: center;">
It seems to have taken us forever, but I think we are starting to find a rhythm in this journey!</div>
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In the rehab unit, Nathaniel is getting 2 PT sessions, 2 OT sessions and 2 Speech session EVERY DAY! Wow! That is a A LOT of therapy, but that is the whole reason we are here. This is going to be a season of HEALING and RE BIRTH for my boy. So, with this sort of schedule for him, we are finding ourselves falling into a rhythm finally. </div>
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First we climb out of our bed mazes in the morning....</div>
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If you missed yesterday's post about the fun with beds, you really should go check it out!</div>
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This is our living space right now. Notice no wheelchair or walker room. Notice the sink mommy's bed is under. Yes. It's an adventure! We are still praying for a window room. It would be SO much better! Especially since the family house is filling up and I might get rotated out of there soon. But God's got it.. I know He does!</div>
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After we climb out of our bed cages, we get dressed and do morning self care. This is still REALLY difficult for Nathaniel, as he can't balance alone yet, and his flexibility is not too great yet either. But we get it done. And we get it done in a TINY bathroom too. Sigh.</div>
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Next up breakfast. I will usually order Nathaniel's food, then the two of us will take a wander down to the cafeteria to get mommy's coffee. By the time we get back up to the room, Nat's food is usually there and we have breakfast together.</div>
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His first therapy appointment is usually at 9, so at that time he goes with the therapist and I wander back to the family house to shower, have some breakfast myself (I have a place to store my food from home there, so it is cheaper and healthier to eat there) and if I am doing good, I also catch some fresh air and sunshine while there. Today I was given a key to the GYM at the family house too! I am excited because now I can add exercise to my morning routine too!</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiukfPEyM0i_cUyE64p-oYGv2GjrGIIZ-odMLvlmdT7H7g-F1I6k5H9rwra76mto0Du8s_oWKKs5HyU3mv73pEHIGmIkA5xmcuO0XXev88iTZ1G91KDKlShKyQULjvSOLbi_yYX5YdJTLPw/s1600/6.14.13+Game+time.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiukfPEyM0i_cUyE64p-oYGv2GjrGIIZ-odMLvlmdT7H7g-F1I6k5H9rwra76mto0Du8s_oWKKs5HyU3mv73pEHIGmIkA5xmcuO0XXev88iTZ1G91KDKlShKyQULjvSOLbi_yYX5YdJTLPw/s320/6.14.13+Game+time.jpg" width="320" /></a></div>
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Usually in the mid day Nathaniel has a break from therapy for lunch and we play a game or do art during this time. We had to borrow some new games from Child Life today, as I am tired of getting my booty kicked at Sorry! We will try Uno and Battle Ship this weekend and see if I do any better at those.</div>
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In the afternoon Nat has more therapy and I try to go outside some more. Sometimes I head back to the family house to chill, or do laundry, or shower again if my back is hurting. Other times I go to the patio here and listen to music. Either way, I try to take some me time while Nat is working hard.</div>
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In the evening we walk down to get my dinner, and take it back to Nathaniel's room to eat together again. Tonight I had the best dinner I have had in a long time! Eggplant Neapolitan, Apple Feta Salad and roasted squash.... GF, and veggie, and full of taste. A cafeteria win tonight.</div>
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After dinner we play more games, and get ready for the night. Nathaniel is a rock star for all of the hard work he is doing, and I am figuring out how to stay sane and take care of me some in this journey too.</div>
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A high point of today was that Nathaniel's pressure sore on his face finally healed! It hurt my heart to see that big owie on his sweet face every time I looked at him. It is wonderful to see his beautiful face sans owie today!</div>
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Another high point was this great blanket that Nathaniel was given today. For anyone that KNOWS Nathaniel, then they KNOW this blanket is PERFECT for him... green AND football?? Perfect match! God's hand even in the small things, like the gifts from strangers perfect matches to his likes and passions! </div>
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But the HIGHEST Point from this day???</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj8o96goKfJU_tSSaNAioWwzDJPfyGPf5paDNHf1VjHio5yXY6rDk8r8qqygHK6phZwTZ-qGf15LSQp5jrL_0zPimpDaA7t_58g5E6bO9n6MR_PxqZz_bbBFRc_9tTi8usNKj2MsmnydaUE/s1600/6.14.13+My+Princess!.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj8o96goKfJU_tSSaNAioWwzDJPfyGPf5paDNHf1VjHio5yXY6rDk8r8qqygHK6phZwTZ-qGf15LSQp5jrL_0zPimpDaA7t_58g5E6bO9n6MR_PxqZz_bbBFRc_9tTi8usNKj2MsmnydaUE/s320/6.14.13+My+Princess!.jpg" width="320" /></a></div>
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My baby girl is here to see us!<br />
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I have missed Audrey SO MUCH, and I am so excited that my mom brought her up for the day. Can't wait to spend tomorrow as a family for a day! So thankful for a momma that is willing to spend her weekend relieving me at the hospital at night and bringing me my baby girl! Feeling loved right now. SO GOOD to see them! And good to know that I get to sleep in a BED tonight too! My back will be so happy!</div>
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As always, thank you for your prayers and good thoughts and following our journey. We love you so much.</div>
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Anonymoushttp://www.blogger.com/profile/07703827195954238729noreply@blogger.com0