We have been counting days for quiet some time, but now we are OFFICIALLY counting DOWN to GO HOME TIME!!!   Can you tell I am a little...

Sunday is a day of rest around here. No therapy, no appointments, no real schedule to keep. So we had a REALLY hard day on Sunday. We...

So often here I focus on the journey, and I tell myself I am being real, but in the last week or so I have been struggling with HOW real to...

(sign delivered by Child Life Specialist at CHO)   So, in case you somehow missed it, yesterday was Nathaniel's 13th Birthday! An...

Our first family meeting was yesterday. A family meeting is when I get to sit down with the whole team treating Nathaniel and hear what the...