Showing posts with label Spina Bifida Surfing. Show all posts
Showing posts with label Spina Bifida Surfing. Show all posts

Friday, July 26, 2013

Beach Magic

If you know us at all, you KNOW we LOVE the beach. It is part of the fiber of who our family is. Also, you probably know about out "other" family... our Project Surf Camp family, which is also part of the fiber of who we are.
 
 
With Nathaniel's recent health struggles and surgery I was very worried that we wouldn't get to experience the magic of Project Surf Camp this summer, and my heart was breaking over that. I think Nathaniel's was too, as it was ALL he talked about while in Rehab. You can't possible imagine the excitement and relief I felt when Dr. Sun told us he was released to surf. I actually did cry tears of relief and joy. Our family was able to join PSC for the opening day of surf camps season this year, yet I have been remiss in blogging it because the emotions were just too raw. I am going to take a stab at it today, and hope the tears stay where they belong!
 
To us, Project Surf Camp is:
 
 
Family that welcomes us home with open arms and love in their hearts.
 
 
Accessibility to one of God's greatest gifts for ALL!
 
 
A chance for siblings so differently abled to do something magical together.
 
 
It's a time for personal victories.
 
 
And a time to share the blessings with treasured friends.
 
 
To me personally, this day was
 
 
About contagious JOY! From a boy who had MAJOR, life altering spinal surgery just 38 days before this!

 
It was about personal victories and finding out that no matter how changed his body is, he can still fight back and be victorious!

 
It was about our family finding normal again.

 
And it was about PRAISING the Lord for His GREATNESS!
 
On this special day at Project Surf Camp, I hung up my hat as Board of Directors member, I didn't even take many pictures (and if you know me then you KNOW that is a miracle),
 
 I just BASKED in His glory.
 
I let Him wash all around me as I prayed and worshiped Him for His GREATNESS.
 
I wept tears unending.
 
And I TOTALLY enjoyed the precious gift of my children SURFING TOGETHER!
 
If you wonder why we say that Project Surf Camp CHANGES LIVES, this is just one small story of the HUGE greatness this camp does.
 
If you want to experience TRUE magic, and God's blessing, let me know, I would LOVE to take you down to the beach with us, get you hooked up to volunteer.... I GUARANTEE you will walk away a changed person.
 
I am excited to say, we are heading down to the beach today... and I can't tell you how much my heart needs a little magic today!
 
I also want to mention a quick THANK YOU to Breann Hollon of Breann Hollon Photography for the AMAZING images of this special day that she captured. My dear, sweet friend volunteers her time and talent to come out and take fabulous pictures that she provides to PSC families free of cost. What a sweetheart! But she also does great work here locally too, so if you need so fabulous photographs, make sure you look her up!
 
 
 
 
 
 
 


Wednesday, October 24, 2012

What Does Spina Bifida Look Like?? SBA Day 24

It is OCTOBER!!!!

You know what that means, right???

SPINA BIFIDA AWARENESS MONTH is HERE!!!!

This year words are too much for me.
Plus they say pictures are worth a 1000 words, right?

So THIS is what Spina Bifida looks like:


Michelle
Age 41

And today we get a DOUBLE DOSE of Spina Bifida! Please Meet:
Laura
Age 2


*Would you like to participate in my Spina Bifida Awareness posts?? Just email me some pictures of yourself (or your child), you name and age and I will do the rest! Send all information to simplysoares@att.net !*

Tuesday, October 2, 2012

What Does Spina Bifida Look Like? SBA Day 2

It is OCTOBER!!!!

You know what that means, right???

SPINA BIFIDA AWARENESS MONTH is HERE!!!!

This year words are too much for me.
Plus they say pictures are worth a 1000 words, right?

So THIS is what Spina Bifida looks like:


Nathaniel
12 years old

Friday, December 9, 2011

Take THAT Spina Bifida!

Some things take YEARS of work....
But are TOTALLY worth it!

ESPECIALLY when the person doing it has been told that he will most likely NEVER walk due to his Spina Bifida!

Please take a few minutes and watch HOW AMAZING our God is!
And if this doesn't show you why I LOVE my God, and I LOVE PSC, nothing will!

The first year we surfed with PSC was 2009.

It had been a ROUGH summer with services, and disability related things. People who were supposed to be trained in interacting with children like mine dropped the ball big time, several times throughout the summer. Then there was this surfer guy at church trying to get me to bring Nathaniel to a surf camp for special needs kids. I  would see him and go the other way! In my mind he just DIDN'T GET my kid. There finally came a time that I caved, and I agreed to bring Nathaniel to camp to check it out.

And it was LOVE at first sight.
Nathaniel LOVED surfing.
I was in TEARS on the beach watching my child get supported the RIGHT way in doing something special.
And the girls LOVED participating with Nathaniel.

This is a video clip from the first day Nathaniel ever did Project Surf Camp in August of 2009.
Notice the shallow water.
Notice the GREAT volunteers.
Notice the HUGE smiles.

In 2010 Nathaniel COULDN'T wait to get back to surf camp. And I was praying for a way to make his surf camp dreams come true. This was the first summer I was a single mom, and money was TIGHT to say the least. But God had a plan....

 In June I got a phone call that would CHANGE our summer that year. John Taylor, the director of PSC was in a TIGHT spot. He had producers from NBC coming to film the camp the NEXT DAY, and the group that was going to be at the camp that day had to pull out for confidentiality reasons (it was a group of foster kids, and they couldn't be on national television!)  Now I KNOW special needs people, and I have connections in that community. With a few phone calls we were able to have a camp full of kids for John the next day!

Check out what happened that day HERE!

Thus began the 2010 Pepsi Refresh ride for our family with Project Surf Camp. It was a summer I could NEVER have dreamed giving my kids and we had a BLAST riding the wave with PSC. John was so grateful for my help getting kids to his big day that he let my kids surf often that summer. And we were always invited to NBC/Pepsi Refresh events.

Through countless adventures with PSC in the summer of 2010, Nathaniel became more confident, more daring and more in love with surfing! 

He even won his very own surf board!

This is 2 video clips from Nathaniel surfing in 2010

6.25.2010
Notice the independence.
Notice the confidence.
Notice the joy.
6.25.2010 With assistance....
Notice the dedicated support to bring about victory.
Notice the little boy who was not supposed to walk....

Surfing has become a passion for my kids. They LOVE it. In 2011, I was generously invited to join the board of directors for Project Surf Camp. As a board member, one perk was that my kids got to surf OFTEN in camp! We spent countless hours on the beach, me shooting pictures, Nat and Audrey surfing in camp and Brianna volunteering with other campers. It was a family event, and for those five weeks we lived PSC.


7.29.2011

Through the tears in this mommy's eyes there are not words to describe that clip.
My boy. Born with Spina Bifida. Getting himself to a standing position on a moving surf board unassisted.

PRICELESS!!!!

This is why I LOVE our PSC family.

And this is why you will ALWAYS see me doing anything in my power to keep the funding rolling in for PSC so other families can experience this joy, this astonishment and this unforgettable feel good!

Our God KNEW what he was doing when he place the dream of PSC in the hearts of many fabulous people and brought this dream to reality!

Friday, July 22, 2011

Project Surf Camp 7.16.2011

Our summer is in FULL swing and let me tell you, the magic is HAPPENING around here!!
Our summer doesn't really start until Project Surf Camp starts...
This IS our summer family.
And oh how I LOVE these people!
Summer flings abound!
(Audrey SWEARS she and Ian are getting married... every summer!)

Happy kids that will comply so that they get to surf!

And lasting friendships that get renewed each time we hit ht beach!

Project Surf Camp is about empowering, about broadening horizons, and about breaking down boundaries.

But mostly.... Mostly it is all about the MAGIC.
Can't you SEE the magic in those smiles??

Water breaks down the boundaries, and equalizes these special kids in so many ways...

But really... it's all about that smile to me!

My fearless little man!

Standing up again!!!
Take THAT Spina Bifida!

And Audrey is not sloucher either... she is AMAZING out there!

So I am going to over kill the pictures...

But I can't just choose one!

They all make my heart SING!

And bring a tear or two to my eye!

But mostly....

This kids are just....

Too danged CUTE!!! not to post the pictures!

I don't think Nat and Annette are new friends...

I mean friends don't smile like that do they????

We are SO BLESSED that PSC is back under way, and now that I am on the Board of Directors my kids get to surf like daily!!! How blessed am I? I get the honor of serving an organization that I LOVE and by serving my kids get to surf whenever they want??? Is there any loosing here? Because I don't see it!

You HAVE to take a minute and check out these video clips.

Don't forget, Nathaniel has Spina Bifida!

And Audrey?? WOW!! She is killing it out there!






If you want to see all 100+ edited pictures check them out HERE!